Hi Teresa
Just caught up with your posts – I've not been posting long myself but have learned a lot from the wonderful and supportive members of this forum. I was diagnosed October 2011 but recently my treatment has stalled a bit. Hopefully I'll get to a sct stage soon.
Anyway a belated welcome to the forum
Andy xx

Hi David
It's great to hear your good news it gives everyone a lift. Especially me as I seem to be stuck in a bit of limbo at the moment. I hope you cough soon passes and you can get out and about again. Though the weather we're having here is good indoors weather.
Let's hope for more good news posts
All the best
Andy

Hiya Neelie.
First of all welcome to the forum. Not that it's a forum that one would choose to be a member of but we are where we are. You'll find it's a good supportive group with good advice.
I had to wait 18 months for diagnosis from first going to the doctors with back problems. Nearly a year spent going back and forth for pain killers and…[Read more]

Hi Helen
I feel fine thanks. If it wasn't for my back I wouldn't know I was ill!
I started my first REV – DEX cycle yesterday so I'm on DEX time. Feel tired during the day and wide awake at night lol. What's you excuse being awake so late?

Andy xx

Hi Dai
The beer festival is held at Nottingham castle mid October last year it was a week after Steph and I got married and 10 days after my diagnosis. This years dates are October 11th – 13th inc. They're aiming for a thousand different beers this year :-0
Hopefully I'll be fit enough to go 😉 I've been a member of CAMRA a few years now.…[Read more]

Hiya Susie
Sorry to have to welcome you to the war on myeloma. You will find loads of support and advice from the happy band that makes up this forum. I was diagnosed October 2011 after 18 months of back trouble when my paraproteins were 50. I'm down to the mid 30's now but it is proving difficult to get them lower. My consultant wants me below…[Read more]

Hi Kay
Thanks for your reply it has given me a lift knowing your pp's where high and you still got a decent result from sct.
I haven't actually drank hardly anything since Christmas and I can't say I've missed it. It was good to go out Saturday just to feel "normal" for awhile.

Cheers 😉
Andy xxx

Thanks for all your input into the alcohol question. I will see how I get on with revlimid before I try some beer but hopefully I'll be ok because there's a beer festival at the club over Easter weekend and I wouldn't want to miss it.…[Read more]

It worked

[url=http://www.easyfreesmileys.com/facebook-smileys.html][img]http://www.easyfreesmileys.com/smileys/free-random-smileys-741.gif[/img][/url]

DEX is good for something lol

Hi
Here's my attempt from an iPhone.

[url=http://www.easyfreesmileys.com/facebook-smileys.html][img]http://www.easyfreesmileys.com/smileys/free-random-smileys-1006.gif[/img][/url]

Andy xx

Bumping this post up again so that people know how to get hold of Scotty if they want to join the extra Under 50 site….as she says, the language is a bit riper but it is another type of support. x

Hi there.
Just couldn't help but come in on the alcohol question 🙂
My consultant said when I was on revlimid that I could have a couple of drinks but that I probably wouldn't want to!! Boy was she right…couldn't even face champagne! Then when the revlimid stopped working (my pp had come down from over 50 to 28), I went onto revlimid….I…[Read more]

Hi all
I start my next round of treatment today! So last night we went out for a drink for only the second time this year 😉 We saw a good band and I had several pints of real ale 🙂 We've come to the conclusion we're going to live life as much as possible or as much as my back will allow.
Planning to take a trip to the lakes later in the…[Read more]

Hi Eve
It's good to hear yours and Slim's good news. It's given me a lift as I begin my latest attempt at getting my stubborn paraproteins to a level for a sct. I'm lucky in that I'm only 10 mins from my haematology department though if errr I mean when I go for a sct I'll have to travel to Newcastle freeman hospital which is nearly 40 miles…[Read more]

Hi Mavis and Dai

Mavis I am turning my anger on to the pp's but I'm also hoping the drugs will help out a little. Thanks for the good wishes 🙂

Dai my pp score is in the mid 30's it was just over 50 at diagnosis – I think. CDT got them down to the mid 30's but no matter what treatment I was on they refused to go lower!
Ideally they want…[Read more]

Hi Kirsty

Welcome! Not that you want to be here. There are lots of us here to support you….I don't come on too often as I'm just post transplant and need a bit of a break occasionally whilst in remission.

I was 34 when I was diagnosed with smouldering myeloma, and then started treatment in 2010, just over a year after initial diagnosis. I…[Read more]

Hiya everyone.
Been for my latest blood tests today – The result of which is I am no longer neutropenic 🙂 I won't get the results about my paraproteins till later in the week.
I have been booked in for my second round DT PACE treatment next Monday. So that's another 5 nights at the hotel NHS.
I'm a bit nervous waiting to find out what my…[Read more]

I would just like to say a huge thank you for all the kind words. We are managing day by day and tear by tear. My 1st concern is the 2 oldest kids. I have spoke with both their schools and am sorting bereavement counsiling for them. The baby is doing better. Getting to be more of herself. Hopefully they will cope OK on Friday. It's tough to be…[Read more]

Hi Dai
I also get tingling round my mouth and lips. I wasn't sure if it was dex or thalidomide that caused it. However dex got the blame for my fat face!

Andy