Hi all
It is great to be home though as Tom says its a bit scary not having the safety net of nurses and doctors around. But as Tom also says there's less risk of picking an infection up at home than in hospital. I'll do my best to report any changes Dai – it has been drilled into me how important it is – but I am a bloke :-/ I've just had…[Read more]

Hi everyone.
I woke up in my own bed this morning 🙂 No nurse waking me at 4am for obs. I was let home yesterday evening with a carrier bag full of drugs. I'm still feeling ok – thankfully. I know I need to be vigilant for the next few days but I'm glad to be home.

Andy

Glad to hear that you're getting better…and enjoying the shorter look! I have to say, I was v positive until I went rollerskating with my 7 year old on Friday and one of her friends told her to 'give your dad a drink'…..hmmm, Nick was nowhere to be seen which just meant that he thought I was a bloke! Now, do I take it seriously?!

Thanks so…[Read more]

Hi Dai

It's good to hear your pain is easing. Hopefully it'll soon be gone completely. There's nothing worse than constant nagging pain. We've all got our personal battles going on but if we stay strong and positive we will improve.

Wishing you pain free

Andy

Hi all
Well I'm only 10 hours away from the end of the first round of DT PACE and I'm feeling ok. I'm not counting my chickens though after all the warnings about the days after being bad.
Thanks for the link to the blog Lorna it was interesting.
I've just had my obs and everything is fine. Hopefully the pesky PP's are having a hard time and…[Read more]

Ah thanks Helen. I'm sorry that I haven't been on here more but what with the kids, redoing the bedroom and trying to organise the ball, life's been so hectic….and perhaps there has been a small part of me trying not to let myself become too bogged down with having myeloma. Selfish I know.

My hair is staying short for a while….hopefully…[Read more]

Hi all
Well I'm nearly at the halfway mark and I'm feeling ok. Like Bridget said and all the nurses keep telling me my bad time could come after discharge and I have to be very vigilant and monitor my temp regularly. Hopefully it'll be ok because I'm having at least 2 cycles.

Hoping everyone is ok
Andy xx

Hi Dai
Good to hear your test results are good. Long may they stay that way and your painful shoulder disappears. Well the pain disappears not your shoulder 😉 there's nothing worse than a constant nagging pain.
Here's to a pain free future
All the best
Andy

Thanks for all the good wishes.
I'm now in hospital and have just been connected up to all my infusions. So the battle has started. Only 3 days 23 hours and 50 mins to go – not that I'm counting 🙂

Thanks once again for all your messages of support.
Andy xx

Hi Bridget

I'm sorry to have read this….and sorry I haven't been on here for so long to have seen what you are going through. You are always such a strength to everyone, and such an inspiration….it is not fair that you are having to go through this.

I will keep hoping and praying that they come up with a new option for you, or like…[Read more]

Good luck Chris and Lena!

Sounds like you've got an exciting time ahead of you 🙂

Take care
Debs x

Hi Amelie

Sorry to hear about John needing a second SCT but sure it will all be fine!

Just a thought, but what about those Callipo ice pots that are full of lots of little flavoured ice balls? Think it's callipo or calypso or something???? Might be a bit more pleasant?

Debs x

Many thanks for all the supportive comments.
I've just been looking at the list of drugs I'll be on during my stay in hospital. It's a very long list! Cisplatin, cyclophosphamide, etoposide and doxorubicin all by IV and continuous for 4 days. Thalidomide and of course dexamethasone orally and 5 or 6 anti side effects drugs.
I think I may be in…[Read more]

Hi Bridget
Just read your post – dex is keeping me awake – I'm very sorry to hear your news. As I'm new to the MM battle I haven't much knowledge of treatments or advice. I can only hope that you receive something that works for you.

Best Wishes
Andyg XX

Hi Kay and Eve
Thanks for the welcome. It good to know that there's people who care enough to support and share with others their experiences whilst in the middle of the MM journey. I'm on the first rung of the SCT ladder as I'm being referred to the transplant centre at the Newcastle freeman. I'm not sure how long the process will take from here…[Read more]

Hiya Keith my wife and I will be there Saturday.
We were at the support group meeting last week – sat round the same table.

See you there
Andy – oh and Steph