[tomParticipant]

Hi Pat….thank you for your well wishes and fingers crossed you get the drugs sorted out sooner than later..
Mike thanks for that, that’s not too many drugs eh ? And infusion will get to once per month sounding good to me…am ready…👍

Have a great weekend you all…..onwards and upwards

Tom x

[tomParticipant]

Hi Pat….thank you for your well wishes and fingers crossed you get the drugs sorted out sooner than later..
Mike thanks for that, that’s not too many drugs eh ? And infusion will get to once per month sounding good to me…am ready…👍

Have a great weekend you all…..onwards and upwards

Tom x

[tomParticipant]

Hi Pat….thank you for your well wishes and fingers crossed you get the drugs sorted out sooner than later..
Mike thanks for that, that’s not too many drugs eh ? And infusion will get to once per month sounding good to me…am ready…👍

Have a great weekend you all…..onwards and upwards

Tom x

[tomParticipant]

Hi Pat….thank you for your well wishes and fingers crossed you get the drugs sorted out sooner than later..
Mike thanks for that, that’s not too many drugs eh ? And infusion will get to once per month sounding good to me…am ready…👍

Have a great weekend you all…..onwards and upwards

Tom x

[tomParticipant]

Hi Pat….thank you for your well wishes and fingers crossed you get the drugs sorted out sooner than later..
Mike thanks for that, that’s not too many drugs eh ? And infusion will get to once per month sounding good to me…am ready…👍

Have a great weekend you all…..onwards and upwards

Tom x

[tomParticipant]

Yes Mike it’s good to know now but it’s took an age to get it started.sounds like your doing good on it for early days that’s good.
I haven’t been given a time to be told how long before they know it’s goung to work, do you have the Dex for two days after the infusion and is it only two tablets ? And do you need to take anything else, he said something about other meds but never elaborated ?.

Well fourth then fifth? I don’t know what the fifth would be am gussying something else will pop up by then..
Good luck and as you will be three weeks ahead of me I will keep my eye on you…..onwards and upwards x

Tom

[tomParticipant]

Thank you Susie, it will work great for me…..xx

[tomParticipant]

Aww thanks for that susie, yes it’s a bad feeling knowing drugs for ever….good luck Susie fingers crossed for you xx

[tomParticipant]

Hi everyone
I will be going on daratumumab soon, it will be my fourth line of treatment, it will be given via cannula. It should start in the next week or two….
All the best to you all…..onwards and upwards

Tom

[tomParticipant]

Hi Susie and everyone
I was a member and regularly posted on here……but…I left because some of the posts went missing….and others only half posted…never understood how half my post posted the other half shot into cyberspace lol….that said it looks and feels those problems have been fixed.
So onwards and upwards is back……onwards and upwards

Tom x

[tomParticipant]

Hi Jaime
Sorry to hear about your Mum and also sorry to hear of the loss of your father.
I would ask at the hospital and or McMillan if there are groups of people that is willing to help, also the churches usually have members that are willing to pop and see people and sit and have a chat….shame your siblings aren’t standing up to the plate when your mum really needs them…so sad….
Hope you can get some help and company for your mum…..onwards and upwards

Tom x

[tomParticipant]

Hi Susie
Aww thanks for that, I never actually left myeloma groups I just left this one due to what I posted above…I have been very active on the Facebook myeloma group.
I am pleased that my comments helped you back in the day…
How are you doing these days ? What treatment have you had and or having these days…..
Onwards and upwards
Tom

[tomParticipant]

Hi patsyann
Sorry to hear David’s relapsed, wish you luck with getting the Dara…. I think your consultant has to plead David’s case as I have been told it’s only for the fourth line of treatment..
Oh thanks for the comments re coming back to the group….I left because of the problems of post that I sent…going missing and or not all I had written being delivered…fingers crossed it’s fixed.
Onwards and upwards……..
Tom

[tomParticipant]

Hi Mike
I was told months ago I had relapsed, we to Leeds to see professor cook to see what he thought, lovely unit you have there,

Hope the back holds up

Tom

[tomParticipant]

Hi Mike

Pleased it went well for you and had little side effects, thanks for letting me know, but was a long day for you.
I take it you had bloods done and a pet scan ?
I am looking forward to going onto this regime it’s had good reports, and our unit in Scunthorpe have just been trained on it.
Thanks fo accepting me and am same I aren’t sure how to use it either lol but am sure we could crack it.
Which hospital are you having your treatment at ?

Tom

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