[tomParticipant]

|Well Good Folk, my tip for the dreaded Hiccups  is as follows :::

Fill mouth with water, put fingers in your ears (so you cant hear) and then swallow slowly SLOWLY.

Good Luck it works for me when i get them on Steroids and even the my family and friends everytime

Tom Onwards and upwards xxxx

[tomParticipant]

Hi Lois

I have one or two

Hiccups My Cure when you get them ::: fill your mouth with water, place fingers in ears to block them, then swallow slowly till all water has gone, (works for me every time)

surround yourself with nice people.

be honest with Family and friends with how you feel, honest it helps you and them cope better

Listen to your body, if it tells you to rest,rest

do good things on good days.

Good Luck with the Book i think its a great Idea.

Tom Onwards and Upwards

[tomParticipant]

Hi Susie

Sorry in my late reply and am sorry I cant help as so far i have a little bit of back pain but its (or so am told) arthritis ???   am sure your bloods will tell your Consultant if the Myeloma has kicked in and my advice would be to talk to him or his secretary and ask for more bloods to be taken and let them have a look.

Good Luck and I hope you stay as you are for years and not  need treatment

Tom Onwards and Upwards xx

[tomParticipant]

Hi Graham

Sorry for the delay in my reply, but a warm welcome.

I am age 58 now and had my treatment CDT in feb 2009 leading up to my SCT in December 2009 was in remission and drug free for four years,

So what you are going through is a doable but you will have to listen to your body and when it tells you to rest rest its the only way.

My Myeloma has kicked off again and I am on my forth Cycle and third Velcade in that Cycle.

as for the Hiccups my chosen method and it works for me all the time is :::: fill you mouth up with water, put your fingers in both ears, and then swallow SLOWLY and then walla all gone 🙂

Good Luck in your road to remission

Tom Onwards and Upwards

• This reply was modified 10 years, 6 months ago by  tom.

[tomParticipant]

Hi Keith

Well done you are running nearly 🙂 as for the weight loss mine was a fair lot but my Dr (GP) would have told me that should be my normal weight ha ha.

as for hunger am on it with the Dexam afraid but al cope with it and start to cut down. keep on going like you are Keith

Tom Onwards and Upwards

 

[tomParticipant]

Thanks izzie.

yes I hope your new drugs help ease your pain.

Helen I am a granddad to six and our home has got toys from one end to the other these iccle toes are used to standing on lord knows what and lord knows how sharp it is, haha

 

love from iccke ole twinkle toes he he

Tom onwards and upwards x

[tomParticipant]

Morning Rachel

sorry to hear about your Brother, and I wish him luck in the road to remission.

i was diagnosed in 2009, had CTD leading up to the SCT in dec 2009. That gave me four years remission and drug free.

my myeloma has returned and am now on Velcade and Dex, just started my fourth cycle on it and to be fair it’s treated me pretty good, not too bad with side effects to be fair.

any Q then please ask away.

 

tom onwards and upwards xx

[tomParticipant]

Stanley

Your More than welcome my Friend and to be fair helping others does help me so am sure i am being a bit selfish ha ha.

your getting on good with  your Bosses thats a good sign it makes the treatment bearable if you have one less worry

 

Tom Onwards and Upwards

[tomParticipant]

Hi Izzie

Good Luck with the pencil in SCT but the sooner the ink is on the better lol,

I had a bit of PN  in 2009 whilst on CTD but not too much that it bothered me to be fair, just near got rid of it when the darned MM came back (was told December 5th) now on Velcade once per week subcutaneous and my iccle Dex, can just feel a slight change i my toes but not too much to bother so far, I do get fatigued but I rest when am early told by my body but do a fair bit of moving about on my feet long walks with the dog nice and steady ones.

 

God Luck with your SCT

 

Love Tom Onwards and upwards xx

[tomParticipant]

Hi Maureen and Ian

As if Lol, we had a great time in Chester its a great place, am sure we didn’t rest as much as we would have done abroad and it was nearly as expensive.

We would go back to Chester as we both loved it

Hope you two are doing OK

Love Tom Onwards and upwards xxx

[tomParticipant]

Hi Stanley

Good Luck in your treatment, I was on CDT in 2009 prior to SCT same year.

I was four years clear and drug free after my sct  but as i knew it would come back it has, now on Velcade forth block first session go every Monday for it.

Back to the CDT I had to go on sick half way through my Third block and was off work for one year, that took in my sct and recovery from that, its not a easy peasy but its a doable you just need to listen to your body and when it tells you to rest then rest.

Good Luck on your road to remission

Tom Onwards and Upwards x

[tomParticipant]

Hi Keith

Sorry you have been unwell Keith, I went through that when I had mine in 2009, even post SCT i was near bedridden for about a month, the young bride used to make me a pack up and flask for me when she went to work (in case i wanted to eat ) it took its time Keith to be honest but one morning I just woke up and felt OK and i mean OK just like I turned a corner during the nite 🙂 the dog knew and when the young bride came home she knew just looking at me It were great.

The above will come to you Keith in time I took it one day at a time never put pressure on myself just went with the flow.

Keith the Diarrhoea is one that will be with you for the longest am afraid as and when I started to eat properly I could not go everywhere till I went to the Loo,it calms down but I do know its in charge ha ha.

small tip for eating at home :::small plates with just a little on I used to nearly be sick when Elaine brought the food in as I could not face it, so Elaine brought it in in small plates so as not to over face me with it.

 

Good Luck in your road to remission its not complete yet but well over 3/4 done

 

Tom Onwards and Upwards xx

[tomParticipant]

Honest I will look at the link to see why my pistol get half left x

big hugs Jo xx

[tomParticipant]

Hi Jo

yes am sorry about that

[tomParticipant]

Hi eaglesham

sorry to hear about your dizzy spells yes I had them when I had CDT in 2009, and to be fair I had to go on sick leave halfway through my third cycle, I was then off for a full year that took me through my SCT and recovery of that.

it put me into remission for four years so I feel it was worth it that so I am doing it again but this time I am haveing Velcade and Dex once weekly, seems to be doing the trick.

stick with it my friend  it will up and down but a doable.

 

tom onwards and upwards

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