[tomParticipant]

Hi Everyone

Well am back and had a great time with Elaine(the young bride) and two Grandsons (Alex 9Years and Liam 7 Years, Lord knows i wasnt ready for a zimmer frame before I went to Thorpe Park" but I tell you I could use one today Ha ha.

Dai Am pleased to see your getting better 😀 am my you have been through the wars, The NHS is truly testing your Carma am sure.

Keep well and Strong. and it was the Lovely Sian who kept me well informed and for that I thank her 😎

Not seen anything on here about Paul yet??

Love to you all

Tom "Onwards and Upwards" xxx

[tomParticipant]

Hi All

Yep our Dai is going through the mill of Late I got these to inform me how he is doing 🙂

::::::::::Hello Tom, Dai is quite poorly at the moment he has some sort of stomach bug, but he also had DVT in his other leg and it has travelled to his stomach, they are considering surgery but allowed him home yesterday. Good news is his cancer is under control at the moment unfortunately the medication is quite aggressive and is causing problems in other parts of his body. Ive spoken with him this morning and he says he is feeling a lot better today., He is just hoping he will be well enough to wk his daughter down the aisle on her wedding day in 3 weeks, but he remains amazingly positive and continues to fight. Thank you for caring
Got the one above on the 2nd Oct

And this one on the 6th Oct ::::Hi Tom, yes he's still home and feeling a little better, the swelling in his leg is going down slowly but surely. He has an Appointment on Monday to discuss further treatment for MM and he's hoping he can have another cycle of Rev, so fingers crossed x

and not much since but I leave a message for him often xxx

Love Tom "onwards and Upwards"

Ps I will be away this week end due back on Monday tekin Two Grandsons to Cleethorpes for the week end.
xxx

[tomParticipant]

Hi Mary

Am pleased Charlie is home and am sure he will stay at home for some time 😎

Its a roller coaster ride getting treatment for MM it has its ups and downs am afraid 🙁 but its as we say Doable 😎
Give my Best to Charlie and wish him well, tell Charlie mine also had its ups and downs but after this lenth of time I (and he will be the same) I forget how bad it was 😀

Love Tom "Onwrds and Upwards" xxx

[tomParticipant]

Hi Mary well it is an Uphill struggle 🙁 but it will be worth it am sure, they will find out why and sort that out so as you also say Onwards and Upwards, Stay strong and stay focused.

Good Luck on the road to remission.
Love Tom "Onwards and Upwards" xxxx

[tomParticipant]

Hi Peter and all

I lost all Hair cept my eye lashes but I gould feel those falling out as the time went, but me I was balder than a Coot (if a coot is bald??)
so no more nasty Nose hair nor ear hair that needed trimming lol

Nettie I trid the The L'Oreal oil and it was great folk could see the shine in the dark Lol.

so for all of us that are or going to be bald for winter I suggest a good warm Hat 🙂

Tom "Onwards and Upwards" x

[tomParticipant]

Hi Peter

Well I felt like I had Flu a few days after my Zometa aches and Pains you know Like flu, it soon passed then after a fair few month my veins fought the needle each month and used to play hard to get and when they did find one and blood was flowing it would Collapse and Nurse (bless) would have to have another dig in Lol.

Go ahead with your work but cut down after a day or two in case you get the flu (ish) symptoms 😎

Hope you have had any dental work done as you dont want to have teath pulled when on Zometa.

Good Luck with it all.

Tom "Onwards and Upwards"

[tomParticipant]

Aww you two thats great news 😎 And just to let you know I had a few tears after reading your Bags are Full, am that happy for you both I cant smile wide enough, but i am gonna have a vodka for you two.

Love Tom "Onwards and upwards" xxxx8-)

[tomParticipant]

Hi Louise

Hope its all sorted now and i wish your Dad Luck in the treatment that has been given, it will have its rough days but it will be well worth it

Tom "Onwards and Upwards" xxx

[tomParticipant]

Hey you all hope you dont mind me tagging in here to wish you all the best for the SCT xxxx

[tomParticipant]

Hi Kerry try this
http://www.myeloma.org.uk/patient-services/ask-the-nurse/

this should open up a page on here so you can ask the Nurse.

Hope it works

Love Tom xxx

[tomParticipant]

Your More than Welcome Kerry, and dont forget you can Phone the Nurse/ send an Email to them.

Love Tom "Onwards and Upwards" xx

[tomParticipant]

Hey Jane
Am not sure if you are aware of this BUT this is the Rant room so Rant as often as you like its good for us 😎 and whats good for us is OK here 😀
I think I also was stage brought up but I just have too many teeth Lol, and have been told many a time I have eyes that sparkle, thats it Bull over for the moment.

Like Jean says if the partner does not know what is happening their mind goes haywire with worry so I suggest you share it all.

Tom "Onwards and Upwards" xxxx

[tomParticipant]

Hi Kerry

Sorry to hear about your Mum but may I say a well done to her and her team 14 years is great and am sure more to come.

As for the Zometa am not sure how long it stays in the system? but am sure I read in here that some one had it removed (cant recall who or when?)

Good Luck to your Mum and give her my regards, and hope all is soon sorted.

Love Tom "Onwards and Upwards" xx

[tomParticipant]

Hi Mike

And the show must go on 😀
Good Luck on your treatment, I was told 2009 that I had MM, treatment was 5 courses of CDT then SCT in dec 09 now in remission and doing great, some times it was Uphill struggle but trust me well worth it all 😎
Oh and I am 57 years young 😎

Ask if you need to know owt.

Tom "Onwards and Upwards"

[tomParticipant]

Hey Chris

Thats Good news 😀 it wont feel it for a bit but its well worth the odd bits that happen during your recovery, lets hope its as good as I can remember Mine being pretty good.

As for the Panic to get everything done before you go in trust me it will wait till you get out and better.

Fingers crossed for a fast recovery and home soon (i was in 16 days see if you can beat that)

Tom "Onwards and upwards"

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