Thats great news David and a well done to you and your team π
I hope after your X Ray you get the byeeeeeeeee. from them and go out and enjoy the three months respite.
Am sure am due this month some time?? but hey ho am sure My Doc will be smiling π
And Gill am sure you dont sweat am sure if anything you would perspire Lol.
Week end nearly here so lets hope it warms up as I aint too keen on the cold these days
Love to you all
Tom "Onwards and upwards" xxx
Hi Mary and Charlie
Where do I get my positivity from?? well I get it from this forum yep this forum every one drops a bit of it when the post good news and I just go along and pick that little bit up and my Young Bride (Elaine) knits it all together for me and that way I have loads and if you look I have dropped a little bit for you all ((***)) just pick it up and save it π
And it wont be long before those little bits of positivity will be left after your posts, and i will pick those ones up also π
All will fall into place but it will take time am afraid with the ups and downs of MM :-S
Stay strong and dont forget pick those iccle bits of positivity up as you go along.
Love and Hugs
Tom "Onwards and Upwards" xxx
Hi Mary and Charlie
I am sorry to see you are both having a rough time, and I hope nay am sure they will soon have it all sorted, trouble with this darned MM not one treatment fits all, so once they find what Chrlie fits it will all fall into place.
Now as for the roof lark oh gi ower Charlie save your strenth and energy for fighting the MM at the moment am sure the roof will wait, save your energy you two and use it to fight the pitfalls of getting into remission.
Not be long until you are "Onwards and Upwards"
Love Tom "Onwards and Upwards" xxx
Hey Tina
Well Girl now is the time π and am sure you will look great wig or no wig (I never used one lol)
Wishing you a fast and trouble free Transplant.
Dont forget Tina The mouth wash please use it every time you pass or go to the loo and even when you think you might want to go to the loo, the more often you use it it am sure the better, I was using it every 20 mins and my mouth was A OK (nearly) but am sure it would havew been worse if I hadn't used it as often, they will give you more when its near empty.
Good Luck.
Love Tom "Onwards and upwards" xxxx
Hi Ann
Re swollen ankles yep I got those, numb toes well let me tell you I have in the past the most sensative toes ever, that bad i could not cut my onwn toe nails so my young bride used to cut them and had to sit on my legs so i didn't pull away Lol, but during CTD toes went numbe (still are) to me it feels like my socks have slipped down and rolled under my toes:-) even with no socks on he he, Like the others My Dr wasn't too worried.
Good Luck to you all
Love Tom "Onwards and Upwards" xxx
Hey Vicki and Colin
Am sure you will find the resolve to get that Moral breakthrough we all need at the time of treatment Clin is going through, I found it and am sure Colin will, As for the head/chins up if thats a wee bit hard at this time I would go with a head down and a good "Shoulder Charge" it works just as good I aslo had to use that one when I was weak π and as you know it worked π
You two aint fighting this Darn thing on your own you have all of us MM'ers routing for you both π
All the best and it will come through.
Love and Hugs to you both
Tom "Onwards and UpwardsΒ£ xxxx
am on that same stage as you Ali letting the two of them knmow i also am thinking about them π
Love that Onwards Man Lol xxxxx
Hi Pia
And a warm welcome to the site, sorry to hear about your Mum am sorry I cant help with the treatment as all I have had was CTD then SCT.
Just wanted to wish your Mum well in her road to remission.
Love
Tom "Onwards and Upwards" xx
your more than Welcome its a hard time for anyone thats told they have MM and worst for those that are on the the sidelines watching Us MM'ers going through what needs to be done to get into Remission π its a dooable but its uphill am afraid, but you now know where we all are π
Ask away and if you feel like a rant well tis is the place π
Love Tom "Onwards and Upwards" xx
Where is your Dad having his treatment ??
Hi Nicola and Dad
I am fortunate enough to have No bone damage but I was having Zometa infusions every four weeks π
As for the exhaustion I suffer that and am not on treatment so I put it down to having MM and change my life style.
Give your Dad a big Hug from me and tell him to rest and not fight the tiredness sleap when his body tells him to.
Good Luck on the road to remission.
Love Tom "Onwards and Upwards" xx
Hi Alan
And a warm welcome to you, as for the "Twitter" I am on it and as for Face Book am also like a few more on her On it π so go on Alan you have got this far Ha ha.
I am on No treatment now π but I got a Rash after My SCT that was soon sorted, but I suffer bad skin prior to MM and used E45 and had to rush up stairs and wash it off as it was burning me??? am on steriod cream and have been for years and years now, good luck with yours.
I am now Drug free so al leave the comments for those that are on same as you.
Where are you being treated Alan?
Tom "Onwards and Upwards" x
Hi Nicola and Dad ?
Welcome to you Both, and it will get better I was on CTD in 2009 then SCT dec 09 now am drug free and doing Good, I want be as fit and as well as i was Prior to getting MM but its good enough for the moment (I am now 57 years young) still working and blessed that my company have gave me a light duty job and am still on it π
Anything you and Dad need to know fire it off nothing is too silly a Q to ask so dont feel should I shouldn't I just ask π
Tom "Onwards and Upwards"
Ps where is your Dad having his treatment as some one here might be in same hospital and can give Local Info π xxxx
Hi Ian
And a welcome from me, and Lurk and ask anything you feel you need to, pull up the chair and get comfy.
Tom "Onwards and Upwards"
Aww Andy and Steph you two are Nawty telling us all how Hot it is and how cold the bears are π Its been Persistant here in Sunny (thats a laugh) for a few days and no hope of a let up. Why oh Why dint we go with you Lol.
Have a great time and dont worry you will soon be home Lol
One Cold "Onwards and Upwards" Tom xx
Hi Mari
Well av done that stage also he he it aint good ? but trust me you can get a few laughs out of it when Steve is better, Pleased the rash is calmer (thats a bugger) Steve if like me will get to the stage where he wont care if he gets anyone to visit as he (I did) will sleep most of the time.
Tell Steve to try and eat a little bit as he will need it and the sheats will clean :-/ they have seen it all before or so I was told.
Love to you Both
Tom "Onwards and Upwards" xx