[tomParticipant]

Hi Judy
Welcome and sorry to hear about your pain with Velcade but am pleased they soon sorted you out. Where are you now in your treatment Judy ??.

Maureen just to let you know am still on the vodka and red wine lol.

Liz Elaine is doing great ta and ye she has hawk eyes ha ha, but am pleased about that as am sure I would miss something out he he.

Had my Velcade and Dex with my Zometa on Monday and so far it’s just a bit of lack of sleep and a headache with flu symptoms all seems to have settled down now ready for the next Monday lol.

Love to all

Tom onwards and upwards xxxx

[tomParticipant]

Well double post and some missing

[tomParticipant]

Hi Carol
Bragg away young lady that’s something that should be shouted from the rooftops and you have some spare I will need to do another harvest

[tomParticipant]

Hi Carol
Bragg away young lady that’s something that should be shouted from the rooftops and you have some spare I will need to do another harvest

[tomParticipant]

Thanks you all.

Had first one done today and that consisted of Bloods taken, Zometa infusion,10 iccle Dex tabs, oh and one amaprasil (check spelling lol) and my Subcut Velcade, The Velcade will be given every week, the bloods every three weeks, the Dex and Amaprasil to be taken once a week. jobs a good un.

Chris when my cells were collected in 2009 i harvested enough for just under two transplants 🙂 but when they were delivered in December 2009 some one had put them in three bags and not two 🙁 so the consultant said we will use them all and that left me with None in stock 🙁 so it will be another harvest for me am afraid,but hey ho I know it works so am happy (ish) lol.

Stay well you all and Thanks for all your support 🙂

Tom Onwards and Upwards x

[tomParticipant]

Cheers Kevin
Its gonna roll well this new treatment,Happy Birthday to your Stem Cells, its great to be in remission and more so when they give you 6 months before you see Dr again.
Keep well Kevin

Tom onwards and upwardsx

[tomParticipant]

Hi Stanstan, thanks it’s gone be another doable just hope it goes into remission faster so am not too near Xmas for my SCT this time.

Hi Jean, we are also expecting more than four this time round, yes we are both strong folk and will crack it.

Love to you all.

Tom onwards and upwards xxxx

[tomParticipant]

Hi Charlie and Mary

Yes am fine Thanks, yes its come back but to be fair I look and feel better than I have for some months to be fair.

Aww and dont mention No Computer 🙁 when we moved all I had was my Mobile phone to go on tinternet and it just aint the same Ha ha.

We sold our Home and are now in a rented Bungalow put the money in the bank and gonna have some fun with it he he.

Love to you Both Tom Onwards and upwards xx

[tomParticipant]

Hi Megan::Am pleased its not too painful all the time but am sure the niggle knowing its with you is a bugger 🙁 Thanks for your advice, I hope phil is soon sorted x

Hi Helen:: pleased you got through it and I know I will also 🙂 am pleased you are in remission and so soon its a great feeling I can tell you. x

Hi Liz and Kev::: well mine will be once a week and just a wee bit of dex he tells me 🙂 and yes I will be eeping an eye out on it and for it as my young bride will be x

Hi David :::Thans for that, it must have been a begger getting too of it so soon ?? but at least they had something else ready for you Good Luck my Friend. Vasbyte x

Hi San::: yes am told its a Little scratch on the tummy Lol but I still wont be looking ha ha,and I think I might wear my sailors hat to help me sail through it all he he.

Many Thanks to you all and enjoy the week end.

Love Tom Onwards and Upwards xx

[tomParticipant]

Thanks Megan, and yes they cut it down to just the once a week due to the side effects,and I hope for as few as possible Lol.
Hope Phil is sorted re the PN ??

Love Tom Onwards and Upwards x

[tomParticipant]

Hi Jane

Well you are for me young lady.

sorry about your rigs and high Temp and 17 Grandkids wow well done you lot ha ha.
Chest infections is a burden for us all with this MM and High temps we just have to keep on top of it all the time, normal folk can aloow a bit of a delay before Dr is contacted but we have to contact them and have them on our side sooner than most, as for keeping them at bay am afraid we cant but get people to stay away even if the feel they might have that iccle cough and or runny nose.

Good luck and stay well

Love Tom Onwards and Upwards xx

[tomParticipant]

Hi Carol
I am pleased I light your path, We have to stay strong and face it head on I am expecting another four years on this route and am sure we will get it 🙂

Good Luck on Monday and dont forget suck ice pops when they give you the Melphan like it is going out of fashion, and use the mouth wash as its also going out of fashion I used bottles of the stuff when i was in hospital and am sure it helped my moth stay less infected, if I went to the Loo I mouth washed if I went past the loo I mouth washedif I burped I mouth well you know what I mean moth wash nearly as much as you blink 🙂

Love and Big Hugs

Tom Onwards and Upwards xxx

[tomParticipant]

Hi Emma

Am ready for it as I knew it would come back and four years remission I think was good.
Yes the site has had a fair bit of logging on that bad I changed my password a few times thinking it was me ha ha.
Pleased your Mum is doing well and you had a great Xmas.

Love Tom onwards and upwards xxx

[tomParticipant]

Hi Liz

No dont know what treatment will be as yet just guessing at the moment but am sure he will tell me what on Thursday as thats when I go and get my BMB results.

And Jean Elaine and I just might do Belfast this year 🙂

Catcha all Lata (now lets see if ths post goes lol)

Tom Onwards and Upwards xx
Ps photo of the young bride and I on our Holls xx

[tomParticipant]

Hi Andy and Steph
Well you both know how i feel for you two but am sure it wont be long before you are coasting alone and waving to me as you pass Sunny Scunny on many of your jaunts away, I also know you both will stay strong and fight this reroute that has been thrown your way.

Love to you both

Tom Onwards and Upwards xx

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