Hi John, exactly the same, it’s not there permanently, it comes and goes, usually at its worst prior to a clinic, I put it down to nerves!
Regards
Tony F

Hi Chris, sorry that you are here, but it’s the best place to be for encouragement and info, was 67 + when diagnosed, had no bone or kidney problems, went onto the myeloma XI trial, followed by a stem cell transplant. That was 22 moths ago, I am now completely drug free, have no treatment other than a three monthly infusion.
We live life to the…[Read more]

Best of luck cupcake, you can do it? It’s all very scary, really right from the moment you are told that you have myeloma, you just don’t know what to expect.
Parts of the SCT process are unpleasant, for me the worst part was living in isolation for three weeks, but you know it soon passes. I followed Karen into the transplant ward, now I am 21…[Read more]

I thought that vitamin d levels were checked at each blood test.
I take a daily Adcal that includes vitamin D, and every three months have a calcium infusion.
Regards
Tony F

Well done Andy G hope the success continues. Hey the Greek sunshine has probably got something to do with it as well!
Keep going.
Regards Tony F

Done!

Sorry David, I knew we shouldn’t have hijacked the forum to talk about holidays.
Glad the the mm is still in remission and that the skin cancer is not bad, hope they sort out the prostate ASAP

Andy
There’s a new pub opening in Keswick, in the Old Court House, sounds good!

Regards
Tony F

Fiscardo, then on Saturday over to Ithaka for a week. Then it’s the blood test!
I read that you do the Lakes as well, we go up to Keswick a lot, having lived and worked there for 10 years or so.
Sorry to hijack the forum.
But heck you’ve got to live life, maybe sometimes with your fingers crossed.
Regards
Tony F

Haha, doing the same as you Andy. On a balcony overlooking the sea in kefalonia, another week of too much wine and good food, oh and sunshine. Then I’m back for a blood test! and probably a ticking off from the specialist.
Good luck
Tony F

Hello Tom, welcome back!
Vanessa I would be interested to take part. ( I am 70!)
Tony F

So sorry to read that Slim has passed away. My thoughts and my prayers are with you at this time.
Tony F

Bit too much of a coincidence me thinks!

Exactly the same Rebecca, my hair grew back very thick and ultra curly, I had a real mullet. Never had curly hair before, hated it but let it grow for a while, went to the barbers had it all cut short and the curls never returned. Gone back as it was.
Regards
Tony F

Hi Frances, yes I’ve had eye probs though nothing quite as bad as yours. Mine started with really itchy eyes, had to rinse them couple times a day. Then following eye test at opticians was referred to eye clinic with glycoma, was given eye drops, that appears to have cleared the problem but have to report back in 6 months. This is all very recent…[Read more]

Hi Karen, said it before, dread those days before clinic, just like you.
Best of luck, if you see Dr Barton say hello from me.
Hope it goes well on Thursday.
Regards
Tony F

Hi, when I was having my stem cell transplant the hospital I attend have a six roomed isolation ward with private facilities ‘5 star’ there was a gent from the Middle East having a SCT, according to my nurse the whole treatment including harvest was £250,000.
Hope that helps
Regards
Tony F

Eve, so sorry. I am thinking of you both.
Regards
Tony F

Holly, sorry that you have joined this club, but it is the best place for sound advice and guidance. I was diagnosed in 2012, went onto the myeloma XI drug trial! it is all tablet form! no hospital stay. This was followed by a stem cell transplant. Not trying to tell you that it was easy, but I did it, so have many others. My paraprotiens have…[Read more]

Hi, in March 2012 the day before my wife and I were due to fly to Africa for a months safari my GP phoned to advise me not to go, a few days later at the haematology dept at Leicester Royal I was told I had myeloma. I have had no bone or kidney problems. I went onto the myeloma XI trials, and in early February 2013 had a stem cell transplant. At…[Read more]

Hiya folks, I attend the Leicester Royal Infirmary, I’ve only ever had one BMB. As a matter of course the hospital give the patient gas and air, worked a treat for me and speaking to others they were the same.
Odd how they all seem to work differently!
Regards
Tony F