Hi, I was told not to bother with taking supplements, just eat a good healthy balanced diet, veg and fruit especially. Told not to drink green tea!
The specialist nurse at the hospital should give you a diet sheet, my wife likens the diet to a pregnancy diet?
As for survival stats, ignore them, I guess we are all in the lap of the gods.
Did I read…[Read more]

Hiya Pauline and Mark, along with other forum followers, I would like to add my welcome to you. Not a place any of us want to be, but here we are, you will get a lot of support from here, lots of experience and knowledge.
For my part I was diagnosed in march 2012, I was lucky it was a very quick diagnosis, thanks to my persistent GP, I had no…[Read more]

Dear Dave & Gill. I am sure that you have made the right decision. I hope it all goes ahead inthe next couple of weeks.
Remember if you have any fears about the transplant process or any worries about the after effects, just ask the forum.
Good luck.
Regards
Tony F

Hi Mandy, hang on in there, sounds as though you have the right attitude to get through it all, regardless.
I know where you are at, was there earlier in the year and am ok now, even the hair has come back. Any hardships are only short lived, just think when you get home the weather may possibly be summer, sunny and warm, and you can recoup in…[Read more]

Hello Gill and Dave. I am 68, was diagnosed end March 2012. Had lenalidomide, cyclophosphamide, dex and ranitidine for five months, no further drugs until December when there was an aborted attempt to harvest stem cells ( got an infection ) harvest restarted mid January with the transplant beginning February.
Like you Dave during those months…[Read more]

Hello Buzzin Helen, you really are Buzzin!
Let me tell you a little tale about open plan clinics, back in January prior to my stem cell harvest I was in the day clinic for my monthly penidronate infusion. ( i chat to everyone, so would probably get on your nerves! ) Some weeks later, after the stem cell transplant, I was recouping at home, the…[Read more]

Wonderful, how right you are about the appreciation of the smaller things in life.
Glad that you were able to do it, doesn't it make you feel good!
Regards
Tony F

Dawn.
So sorry to read of your diagnosis, not the place that you really want to be!
People here are all in various stages and are more than willing to share help advice and experiences.
If you feel like it let us know your treatment, don't wish to pry but maybe we can be of support.
Regards
Tony F

Best of luck with your stem cell transplant, had mine in early February, this year, feel great now! Best of luck.
Regards Tony F

May just bump into you on the 6th June, my appointment is 11.15, same day.
I agree with you about the day clinic seems to be chaos at times, but he staff are great, first name terms these days!
Regards Tony F

I must have moved into your room as you moved out, can't remember the 'cell' number but I had white cups!
My next clinic is June 6th at 11.45 then upstairs for my monthly penidronate infusion.
Might just see you there.
You are right about Dave, very good and very thorough.
Regards Tony F

Nice to meet you, you seem to have gone through the mill. What dates in January 2013 were you having your SCT? The reason I ask…..I was in the same transplant unit as you from January 29th, we could have been neighbours! We live in Leicestershire and I attend the various clinics at the Royal. I was diagnosed in March 2012, went onto the Myeloma…[Read more]

Sorry that you are here, but welcome to the site. Myeloma seems to affect everyone differently and everyone has a different tale to tell. But whatever the problem or question I am sure that you will find someone to answer it here.
Regards Tony F

I am so sorry to hear your sad news Hawkeye, love to you and your family at this sad time.
Tony F

I am 68 years age, diagnosed in march 2012 , immediately went onto myeloma XI trial, had my SCT this February, had my three month appointment last Thursday. All the blood counts were good, my para protein read 2.2, so am considered to be in partial remission. At the clinic I had a long conversation with the trials nurse about revlimid and…[Read more]

So sorry to read about your mum, strange how mm treats everyone differently. I am also being treated at the Leicester Royal Infirmary, I have found them to be very thorough and caring. I am sure that they will do their level best for your mum.
Hope it goes well for her tomorrow.
Regards Tony F

Good luck with your SCT, the worst part about the harvest is having to lay still for 5 hours! As for the rest of the journey I am sure that you will take it in your stride, all of us react in a different way to the treatment, but you know the unpleasantness only lasts for a short while and hopefully the outcome is worth while and it leads to a…[Read more]

Hi, it was 3 months ago that I had the stem cell transplant, my 3 month check up is on 9th May, so should know more then. Fingers crossed!
Good luck with yours, hope its as trouble free as mine was, I'll be thinking of you both, stay calm.
Regards. Tony F

Hi, we have a very lively border collie, I think that it is the dog that has kept me going through the whole process. As Tom said don't get overwhelmed by cleaning everything, just be sensible, I carry on just as I used to with dog, just wash my hands after stroking him, like me he's very confused by everything. I've gone back to walking him…[Read more]

Evening Stanstan, next appointment with the haematology specialist is on 9th May. Not sure what they will tell me, I wonder if its too soon after the stem cell transplant, that was done on 2nd February. It is good not being on any medication!
Regards Tony F