[tonyfParticipant]

Hi Mandy, bit grim in the SCT area. I hated being in solitary, but hey you get through it and you have. I imagine you, like me, will get stronger as the days go by. I used to set myself tasks to do, achieve them and go on to the next one, it worked for me.
Best of luck going back to work, I've retired so didn't have that to look forward to. We do have a border collie dog and my biggest ambition was to take him out on his daily country walk, I did that after about 6 weeks post transplant, slow at first,bit anxious,but daily routine and welcome exercise now.
My SCT was early Feb and I still get fatigued, though not so much, used to take a nap during the day, but not every day now, can still sleep in the chair during the evening and go to bed and sleep for 8 hours, takes me a while to get mobile in the mornings however.
Hope you feel as though you are doing ok.
Regards Tony F

[tonyfParticipant]

Hi Tom.
Good luck with the SCT. You never know you might just sail through it without any too many problems.
Hotel sounds good!
Again hope it goes well
Tony F

[tonyfParticipant]

Oh Eve, I feel really sorry for both of you. Slim seems to be having a very rough patch at the moment.
Hope you get to see the consultant soon.
In the meantime, chin up!
Tony F

[tonyfParticipant]

Hi Vicky, I had my SCT early February, have gone from strength to strength, but like evryone else I get tired very quickly. I do all sorts of things including going up ladders, cutting grass, clearing out garage, walk the dog for an hour or so across the countryside everyday, you name it…..and I get very tired, can drop off in the chair at the drop of a hat then go off to bed and sleep for eight hours. Like you worrying about Colin my wife is just the same, she tries to slow me down to no avail!
Hey ho it's 10.30 time for bed.
Regards Tony F

[tonyfParticipant]

Good luck, hope all goes well for you.
The advantages out way the disadvantages.
Best of luck
Regards
Tony F

[tonyfParticipant]

Good luck with the transplant, hope all goes well for a smooth journey.
Regards Tony F

[tonyfParticipant]

I'm having a real struggle with insurance companies, I've been phoning everyone on the list that Myeloma UK provide plus others that I find along the way. I'm looking for world travel.
We have travel insurance included with our CoOp bank account, it is underwritten by AXA. But you know anything could happen with the CoOp bank at the moment!
With my current state of health, remission, AXA are ok to insure, but I've been trying to get a second opinion, just in case.
I get some very conflicting results, even with specialist insurance companies, some of the premiums are colossal, others just won't insure.
So, best of luck, with that project. Please let us know your outcome, I'm sure that others on the forum will be interested to know how you get on. Likewise as soon as I get a positive result I will do the same.
Regards
Tony F

Ps. Most positive was Now I Can Travel 0845 2 307 155.
Even got refused by Saga!! haha.

[tonyfParticipant]

Welcome from me Posie, as others have said we are a pretty exclusive bunch. Everyone's problems seem to differ and the treatments differ, but we are all in the same boat together.
Again welcome, keep,smiling.
Regards
Tony F

[tonyfParticipant]

Hi young Tom & Scott.
I've just checked back on the events around my stem cell harvest. Like you both I had the GCSF injections, two at a time for 4 days. Then at 6.00pm the evening before stem cell collection I was given an injection called Mozobil ( also known as Plexifor )
This evidently helps to improve the release of the stem cells.
I had to return for a second day of stem cell collection, so at 6.00pm that first evening I was given another Mozobil injection.
Enough cells were collected over the two days and I was admitted the following week for the transplant.
I am not sure if all hospitals give this Mozobil injection, evidently the cost per injection is £5000 yes £5000!
My hospital is the Leicester Royal Infirmary and that exercise cost them £10,000, so perhaps not every authority give Mozobil as standard.
Scott, lying still for that length of time is uncomfortable but heck it's worth it when they tell you some months down the line that the transplant was a success and you are in remission.
Good luck to both of you.
Regards
Tony F

[tonyfParticipant]

Good news Dai, you'll be ready to take on the world soon.
Keep it up.
Regards
Tony F

[tonyfParticipant]

Hi Karen, keeping fingers and toes crossed for you.
Regards
Tony F

[tonyfParticipant]

Hi Fi, wish your dad the very best of luck with his SCT. I had mine at the beginning of February this year. I was hospitalised for just under 3 weeks. It was quiet scary coming home after that amount of time being nursed and cared for. We were careful about having visitors, anyone with sniffles or coughs and colds were asked to stay away. My wife didn't get to paranoid about cleaning but there were lots of wipes around the house, keeping surfaces etc clean.
As far as food is concerned we were advised not to go for supplements, go for fresh foods, buy pre packed not stuff from the deli counter. Myeloma UK will give you lots of advice.
Like Megan's husband I went for the chocolate box! I drank loads, drank lots of blue top milk as well as water, not juices, they seemed to upset me.
I tried to get my life back to normal as quickly as I could, I started walking the dog after about 5/6 weeks, driving short distances and having visitors, providing they were not full of cold. Bit difficult with a young grandson but we managed.
Now my para protein levels are at 1.6, no more treatments, no more drugs. Have to have all of my baby jabs, but doctor said go out and enjoy life, see you in 2 months!
Hope your dad has a smooth ride.
Regards
Tony F

[tonyfParticipant]

I am so sorry to read this, what a dreadful thing.
Still there is one good thing, after all that nonsense you'll probably get the regal treatment in future.
Best of luck in the future.
Regards
Tony F

[tonyfParticipant]

Good grief, that was a real quickie, well done.
Geoff must be tough old bird!
Hope the remainder of the treatment goes as well.
Regards
Tony F

[tonyfParticipant]

Takes all types of pratts to make up our world, sounds like you got a good one there!
Don't let it get you down, ask yourself a question where are you going when you finish the stem cell treatment and they tell you that you are in remission?
And where is your new found friend going when he finishes his treatment?
Haha chin up mate.
Regards Tony F

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