[tonyfParticipant]

hello carol, thanks for the welcome, is that a glass of white? if it is, cheers! I guess I've got a way to go, cant explain how I feel at the moment. Never had any serious illness so it takes a bit of getting used to. Takes a bit to get used to the kindness shown by all of those I come into contact with, there are some really dedicated people working on our behalf out there, stay in touch, Tony

[tonyfParticipant]

Hi, thanks for the welcome, feeling very positive, guess I've got a long way to go yet, stay in touch Tony

[tonyfParticipant]

Glad you are returning to fitness, long may it continue for you, thanks for the welcome Tony

[tonyfParticipant]

thanks for the welcome Debs, sounds like you are responding well.

[tonyfParticipant]

hi outdoors Paul, take it that you enjoy the great outdoors, do you still get out or are you a bit restricted? We used to live in Keswick, what a wonderful place for enjoying the countryside! Hope your treatment shapes up satisfactorily. thanks for the welcome, stay in touch.

[tonyfParticipant]

oh dear!!!! I had one of those the other night, ended up watching Mad Max 2 on ITV2, dont recommend it, however the tea tasted pretty good! thanks for the welcome

[tonyfParticipant]

hello Tina, Yes I started the myeloma X1 trial last monday, had a bowl of porridge, then took the tablets with water, included a soluable aspirin and the anti sickness tablets, then took the dog out across the countryside for an hour and half, fell asleep in the afternoon, did the same again today, tuesday. So far no disasterous side effects. fingers crossed it continues. I am at the Leicester Royal Infirmary, I find everyone including my GP and the surgery staff, the hospital staff, the consultants, receptionists, care workers, nursing staff are brilliant, even the doctor who had a real problem taking a bone marrow sample was good. Talking of bone marrow, I was given gas /air, very soothing!
Good luck for friday. Let me know how you get on.

[tonyfParticipant]

Hello Badger, thanks for the welcome, cant say that I am pleased to be here, but bowled over by the support. started the myelomw X1 trials on monday morning, so far no disasterous side effects, long may it continue.
thanks again for the welcome, tony

[tonyfParticipant]

Hello Dia, thanks for the welcome, no doubt we will swop stories over the coming months, good luck and thanks, Tony

[tonyfParticipant]

Jean, thanks for the reply, nice to have support from folk who are going through the same difficulties. wish you the best of luck for Thursday, be positive,Tony

[tonyfParticipant]

hi Ted, first day with the tablets, I think it was 34 early this morning and one this evening. Less tomorrow. Touch wood , no side effects, I took my dog for a 1 1/2 hour walk in the country this morning, admit to falling asleep in the chair during the 10 oclock news, but thats nothing new. thanks for explaining smoldering myeloma, I hope you just continue as you are. My local hospital is the Leicester Royal Infirmary, everyone from the receptionists up are really good, I have great faith in them all. thanks for the response, Tony

[tonyfParticipant]

Thanks for the reply and the welcome to the group, thought I was alone out there for a while, so appreciate the contact

[tonyfParticipant]

Thanks for the welcome and the reply, I have found the whole site interesting, no doubt will be using it a lot in the future

[tonyfParticipant]

Thank you, I intend to keep strong, guess there will be days when I am down
appreciate any advice.

[tonyfParticipant]

Thank you for the advice, it sounds sensible and positive.

[Author]

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