[user1203Participant]

Hi Nigel

You may be better posting as a new thread on the treatment page as only people on this one will see your post and it is about lelidomide.
If you go back one page to the treatment page and scroll to the bottom it will let you start a new thread where more people will see it.

I hope things improve for you as it sounds very tough. All the best

[user1203Participant]

Could I please ask when your consultant told you this? We were not told this on Friday and I would assume consultants would have known by then

[user1203Participant]

Just read everywhere an unable to see the November deadline. We were quite optimistic that she may be offered it and this has completely thrown me

[user1203Participant]

Hi mulberry where did you get November 20’from please? My mum had hers mid October and given all 100 day procedures are off due to Covid only have results of it it worked on Friday? Therefore would be horribly harsh to reject her given we didn’t know of it had worked beforehand

[user1203Participant]

Thanks Mulberry! My relative is three months post and due her tests to see how it worked. If (fingers crossed) it went ok, I would have thought she would be eligible but let’s see

[user1203Participant]

Hello
My mum has been in the exact same situation. She’s 65 so we worried around age and risks. She’s scheduled to go in soon.
Its such a hard decision but for us but extra any time would be worth it. I’m not sure the numbers could be held properly without it. How old is your husband? The younger the longer he should hopefully stay in remission it appears.

It’s just such a hard decision and I think we are all petrified but to us, I think ultimately it’s the best decision to do it. I really hope so anyway

[user1203Participant]

Thanks. Very reassuring and kind of you to take your time. Was wondering if there was anyone on here 65 plus who’s had it themselves.

Such a shame re the Lenalidomide. Especially as everywhere else seems to have approved it

[Author]

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