valgrebezs replied to the topic Swollen ankles, feet etc in the forum Side-effects 9 years, 3 months ago
Thank you Finn. xx
valgrebezs started the topic holidays etc in the forum General 9 years, 3 months ago
Mad question for you. from Val, I have posted already this morning. When husband was diagnosed in Oct 2014 we had a holiday booked for Christmas in Antigua and were finalising a house purchase in France.
I asked the Consultant if we could still go away, he laughed and said No! Shame, as I work for British Airways! Also we had to complete on our…[Read more]
valgrebezs started the topic Swollen ankles, feet etc in the forum Side-effects 9 years, 3 months ago
Hi from Val. My husband is halfway through Chemo and has had 5 sessions of Radiotherapy. Diagnosed in Oct 2014. He has really swollen ankles, feet and lower legs and worst of all his stomach is very swollen and he has never had ‘a beer belly’ before. he is to have another scan on 24 Jan. Anyone heard of this? Could it may be the steroids? Any…[Read more]
valgrebezs replied to the topic Trying to find how best to cope in the forum General 9 years, 3 months ago
Hi and good morning at 0741.
Sorry to bore you again. We have a Specialist Nurse who is really not contactable. A Macmillan Nurse who we thought would be more sympathetic. And questions, lots of questions!
why can’t we get some answers?
My husband is sleeping in one of our spare rooms, propped up now with pillows and he actually slept last night.…[Read more]
valgrebezs replied to the topic Myeloma Specialists – London/South East in the forum General 9 years, 4 months ago
Thank you Jane, Guess we are making the right choice. Val G
valgrebezs replied to the topic Myeloma Specialists – London/South East in the forum General 9 years, 4 months ago
Hello Cygnet, Sorry I have only just seen your post. First of all, there is a Marsden in London and one in Sutton. My husband is having chemo and all the initial tests at St. Peter’s in Chertsey Surrey.He had radiotherapy (5 sessions) at St.Luke’s in Guidford. But, I now want him to see a Pain Specialist
as he is always in pain and it’s about time…[Read more]
valgrebezs replied to the topic Trying to find how best to cope in the forum General 9 years, 4 months ago
Hi Maureen,
Thanks for that, makes me feel better. Val xx
valgrebezs replied to the topic Trying to find how best to cope in the forum General 9 years, 4 months ago
Thank you Maureen for the information.I forgot to say that his stomach has swelled also, looks he’s about to give birth and he’s not a fat man. Val x
valgrebezs replied to the topic Requesting information on treatment centres in the forum Treatment 9 years, 4 months ago
Hello Kim
I too would like information on this subject. My husband has only just started his treatment, he has finished radiotherapy and so far has had around 8 chemo sessions and another today.He is being treated at St Peter’s Chertsey but I would like him to be at the Royal Marsden when it’s time for a transplant. It has been highly…[Read more]
valgrebezs replied to the topic Trying to find how best to cope in the forum General 9 years, 4 months ago
Hello Andy and Richard, it’s a very confusing journey and thanks for your replies, which explain the Dex days. Peter also has some sores on his legs and swollen ankles, is that the chemo? Val
valgrebezs posted an update 9 years, 4 months ago
Hi to everyone and thank you fo all your advice, It’s lovely to have this support as I feel that this is not quite right because of his pain. I didn’t mean your support, just that everything comes to a standstill because of the Holiday Seaext questionson and everyone is in limbo with questions. Thank you Freddie and Teresa, you have been very…[Read more]
valgrebezs started the topic Trying to find how best to cope in the forum General 9 years, 4 months ago
Hi, I’ve posted before but will ramble a little (sorry). My husband was diagnosed in October and has since had 8 sessions of Chemo and 5 sessions of radiotherapy. now it’s Christmas so don’t yet know when his next chemo is.
He is taking all kinds of medication (please don’t ask me the names) but last night he didn’t have a sleep for even one m…[Read more]
valgrebezs became a registered member 9 years, 5 months ago