valgrebezs

  • valgrebezs started the topic Vitamins etc in the forum Treatment 7 years, 11 months ago

    Hi from Val, Can anyone tell me what kind of supplements or anything ele they take after SCT to try to rebuild their immune system. thank you

  • hello Colin, big decision for you.  My husband Peter dx Oct2014, had radiotherapy,6 sessions then 12 months of Chemo, and an SCT last December 2015.  he tolerated the Chemo really well but did have 2 bouts of Pneumonia in that time. SCT went OK but really bad chest infection even after that. Was told in Feb that he was now in Remission. he was o…[Read more]

  • valgrebezs started the topic After SCT in the forum General 8 years ago

    Hi lovely people with a fighting spirit.  This is from Val ad I didn’t get even one reply about travel insurance, oh well, I found my own.

    Peter had SCT in early December, was declared in remission in Feb, hair growing back etc. during his 16 months of treatment radotherapy 6 sessions and 12 months of chemo he also had Pneumonia once and a very…[Read more]

  • Hi from val.  I haven’t posted for quite a while as my husband Peter’s treatment took all my time. 12 months of Chemo including 6 sessions sof Radiotherapy.  He has been in the Royal Marsden in London, who were brilliant.  STC in early December followed by a miserable time with after effects, however he was told in early January that he was in re…[Read more]

  • Hi Everyone and Happy Sunday. My husband Peter has been home a few days after 4 weeks in hospital having his SCT.  He has started to eat a little but is very tired but OK otherwise.

    We have  reserved a puppy for collection in 8 weeks, he is a Cockapoo, they are lovely and expensive! I have a friend who is a Myeloma Nurse and she has asked if I h…[Read more]

  • valgrebezs started the topic Home after STC in the forum Treatment 8 years, 4 months ago

    Husband Peter coming home today 4 weeks after SCT.  Any extra precautions I should take with house? Thanks Val

  • Hello, everyone after a long time. Peter’s beginning of stc at Royal Marsden was postponed as he was rushed into hospital last Tuesday night. he has had 6 doses of Radiotherapy and 12 months of Chemo and generally he is fine. ?/chemo didn’t give him any problems at all.,He had Pneumonia at the outset and was in for 10 days. Now in the middle of…[Read more]

  • Peter was admitted to the Royal Marsden in London Uk yesterday. .Had the line inserted and now is on intensive chemo…..24/7. Was already for his sct preparation and the Marsden found more cells affected. after 8  months of Chemo. so 2-3 weeks in here. so glad they found it. But scared. How is he going to be? 24/7 Chemo……………nightmare.…[Read more]

  • Well, Peter transferred to Royal Marsden from local hospital where has had 8 months of Chemo and few radiotherapy. Very happy with Consultants there and all staff, just lovely. BUT….Marsden have done another bone marrow biop and they have found cells that were ‘hiding’.. Poor Peter now has to be admitted on Thursday for 2 weeks intensive Chemo.…[Read more]

  • Thank you Jeff, will

    pass this on to my husband. xx

  • Hi from val, do we need to get our adult children checked? My husband has an adult boy and an adult girl.  I have an adult girl? any answers please. Val xx

  • Hello, not posted for a few weeks, but read regularly.Chemo has finished and Peter has been transferred to the Royal Marsden in Sutton. 6 sessions of radiotherapy and 8 months of Chemo. It really is a long haul journey. So now, we wait…..SCT scheduled for whenever, meeting with Transplant team next week. Although we were there all day, we had a…[Read more]

  • Hello once more from Val.   peter has been taken off Velcade due to very severe neuropathy. For the past few weeks. Yesterday he saw 2nd in command, she told him that they would work out an alternative, so no chemo at the moment! She also said his paraproteins were down to 10. Then she said they wanted to get his figures down and move on to the…[Read more]

  • valgrebezs replied to the topic Chemo and more. in the forum Treatment 9 years, 1 month ago

    Hello and thank you so much for your replies. Mrs ‘Zombie’here as had no sleep last night as husband was in agony.So ‘Zombie’ I am today.Just for info, he has a lump on his back wich has reduced, but not enough. Consultant doesn’t talk much about paraprotein levels and I have taken
    the advice of all of you. Written letters to Consultant which…[Read more]

  • valgrebezs started the topic Chemo and more. in the forum Treatment 9 years, 1 month ago

    Hi, sorry to post again but I had no replies from my posting 2 weeks ago. So will try again.
    My husband has to have extended Chemo when he should really be finished in 2 weeks time. They say his body is quite resistant to Chemo! not heard that one before! We were all ready to make plans for SCT so quite shocked. He has also had Radiotherapy, 5…[Read more]

  • valgrebezs started the topic chemo in the forum Treatment 9 years, 2 months ago

    Hi brave friends, love to all of you fighting this awful disease. Just came back from the Consultant
    and found out that Peter’s 4 cycles of chemo haven’t shrunk his tumour enough so he will have to have another 2 cycles. It sounded very complicated as the Consultant said that it was more difficult when on a bone rather than inside the bone!…[Read more]

  • valgrebezs posted a new activity comment 9 years, 2 months ago

    hello anne
    I will be at the Marsden in April with my husband Peter, sorry I can’t help with your doggie but maybe we can cheer each other up. You can msg me privately if you like and I could make a few phone calls for you. Love Val

  • Hello Tracey, Sorry a bit late in replying to your question but my husband Peter is the patient so I understand how you feel. He is presently in hospital with slight (slight, what does that mean), Pneumonia. Also, he hates hospitals and the boredom. Funny thing is that I can’t cry, only rarely, wish I could as it all seems to be inside me,…[Read more]

  • Hello David and Thank You for your message. Peter has been admitted to hospital as he has pneumonia. not too bad but still, he’s stuck in there. he seems a,little hunched and now doesn’t seem so tall.
    Good luck for everything, what a lousy illness this is. Val. London

  • Hi from Val. Just returned from Hospital at 0530. Peter had breathing problems, so paramedics and ambulance at midnight and he’s been admitted. They think he has a chest infection, so where he got that from I don’t know, as he hasn’t been anywhere! Hate this illness.

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