[welshwillParticipant]

Hi Tony,

Thanks for the reply. It sounds like I was far luckier than you in my diagnosis – both an indolent set of Myeloma tumours and they were supersensitive to treatment, so although I had 6 rounds of VTD and a stem cell transplant I was rarely feeling sick, mainly just after the SCT.

I did find the middle 7 days of my isolation period rough, but I had a lovely lady in charge of the food who made me eat and was very kind and so I got through that on chicken soup and marmite on toast.

I am now in a complete clinical remission, no sign of the Myeloma and I have started my Maintanence treatment and I am going back to work in 2 weeks time so I am feeling good and lucky.

I hope we both stay fit and well for as long as possible.

Regards

Will

[welshwillParticipant]

HI Jane,

Thanks for the links
I have created a login at Healthtree, I saw the myeloma match service but being British felt a bit too reserved to impose, which is silly as it is what it is there for, I will give that another look.

As I have had probably had myeloma for some years without even realising it as I was fit and apparently healthy I hope I am one of the lucky ones who can live with it without too many side effects, I suppose time will tell on that one, especially how I respond to daratumumab.

I am very lucky to be at the Royal Marsden under Dr Boyd and I am a private patient due to having BUPA insurance through work – hence the Daratumumab, I have a whole heap of cards in my favour, now it is all about waiting to see how I respond.

Thanks again

Will

[welshwillParticipant]

Thanks for the link

I will check that out

[Author]

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