Herma Richards

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  • #136817

    whoopiscuba
    Participant

    Hi Sue they put me on this and the second day I went to the bathroom to clean my teeth and to wash the toothpaste out my mouth I realised that I could not keep any water in my mouth. I turned on the bathroom light and found my right eye by my mouth not knowing at the time I got Bell Parsly . As Revlimid also attack the nerves and unfortunately it did not agree with me . It happen on 26/11/16 and I still getting my face back to normal with excerise. Never went out nowhere for 4 months apart from hospital appointments .  All they said I was one off the unlucky ones . Great.

    #136801

    whoopiscuba
    Participant

    Hi Jan take dexamethasone with my Chemo and everything you said s True . At first the told me I had to take 20 of these tabs a week breaking it down too a week.  When on them I had so much energy and got no sleep so I have the sparkling mirrors and windows in my flat – forget about sleeping . Mood swings aggressive as my family pointed out as I never say this.  Oh swollen ankles even though I’m on water tabs .

    No I take 10 steroids on Wednesday and 10 on a Sunday as I was getting fed up of having swollen ankles and having my legs elevated for nearly sometimes 2wks  but I have to say sometimes they just swell up and can’t even get my shoes on . I still suffer from insomnia that’s the steroids I just started this week a class of “Relaxation through breathing” Don’t laugh I actually fell asleep in the class as I had not slept for 3 nits x

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