Hi Kevin,

Thanks again for the prompt response. Good to hear your story and the treatment regimen and treated at home…lucky you.

I’ll keep you posted on how I get on, when it starts…but hopefully it won’t quite be yet. I’m still hoping that I stabilise for a while.

Have a good Easter.

Onwards and Upwards

Scott

Thanks Kevin,

Do you mind me asking how old you are? Do you still work?

I’m hoping that I can continue to work even with the treatment but I do have a pretty sedentary job.

Where are you treated?

Thanks in advance.

Kind Regards

Scott

Phil,

That’s awesome, well done!

Onwards and Upwards

Kind Regards

Scott

Hi Emma,

I was 41 when diagnosed with lambda light chain myeloma and after 4 x cycles of CTD, I had an Auto SCT followed by a RIC Allo SCT (donor transplant).

Should you wish to discuss anything about your treatment, I’d be happy to tell you my experiences.

You can email me directly on scott.mckenzie2@btinternet.com and I’d be happy to chat on…[Read more]

Thanks Peter,

I have lambda light chain myeloma. I have had Auto and Ric Allo SCT’s and I’ve been in remission (after 4 cycles of CTD) since approx November 2013. I consider myself to be very lucky and coped extremely well with the treatment I had.

I have since emailed my Doctor so I’ll see what follows, however as you say, they may not be…[Read more]

Thanks Peter,

I have lambda light chain myeloma. I have had Auto and Ric Allo SCT’s and I’ve been n remission (after 4 cycles of CTD) since approx November 2013. I consider myself to be very lucky and coped extremely well with the treatment I had.

I have since emailed my Doctor so I’ll see what follows, however as you say, they may not be…[Read more]

Nat,

Many thanks. I’m going to give the hospital a call tomorrow and try and get some answers, I have also since found out that light chains can sometimes be elevated because of illness etc. I’e flu or a cold.

I’ll post back when I know some more.

Kind Regards

Scott

Hi Dean,

I’ve too have had tandem SCT. Auto then Ric Allo within 6 months. If you want to discuss then please email me on scott.mckenzie2@btinternet.com

I’ll then give you my number and we can chat whenever suits you.

Kind Regards

Scott

Angela,

Great to hear your hubby is doing so well and its great that he can chill out and enjoy life. Good luck on the Holiday, sounds fantastic!

Kind Regards

Scott

Michele,

Thanks for the reply.

5 years…that’s awesome!

I know there are a few with lengthy remissions and they must be celebrated, if only to give hope and comfort to people who are not that far down the road and are uncertain for the future.

Keep fighting the good fight!

Kind Regards

Scott

Holly,

Sorry, correction my Allo was done in June 2014 (not 2015 as stated above…typo).

Kind Regards

Scott

Hi Holly,

My name is Scott and I’ve not been on here for a while. I came on today to see if there was any information on the Immunotherapy treatment mentioned in the news today.

Anyway I digress…I have had both the Auto and Allo (RIC – Reduced Intensity Conditioning). I was diagnosed in Aug 2013 at the age of 41. At the time I had broken…[Read more]

Hi Misterboy,

It’s been about 8 weeks since the visual disturbances started to happen, however, it has eased. It’s still not perfect, but better.

I did have a CT scan and that came back clear, so not sure what’s caused it, Specialist thinks it may be stress to do with work…so in short it seems to be getting better.

I was diagnosed in Aug 2013…[Read more]

Hi Folks,

I know this is a little clichéd, however I have the quote below on my wall in my office at home and look at it every day. I compare this quote with the struggles with treatment pain and worry which we face, but bravely continue on, no matter what myeloma brings.

“Let me tell you something you already know. The world ain’t all su…[Read more]