McKenzieScott

  • Hi Kevin,

    Thanks again for the prompt response. Good to hear your story and the treatment regimen and treated at home…lucky you.

    I’ll keep you posted on how I get on, when it starts…but hopefully it won’t quite be yet. I’m still hoping that I stabilise for a while.

    Have a good Easter.

    Onwards and Upwards

    Scott

  • Thanks Kevin,

    Do you mind me asking how old you are? Do you still work?

    I’m hoping that I can continue to work even with the treatment but I do have a pretty sedentary job.

    Where are you treated?

    Thanks in advance.

    Kind Regards

    Scott

  • Hi Folks,

    So had a recent marginal increase in my light chains. Been to see Doctor today and although he’s not too worried at the moment at the numbers which are approx 102. He did discuss if they increase again that he may want me to go on Kyprolis or Carfilzomib. Apparently I qualify because it’s a biochemical relapse which is essentially a…[Read more]

  • Hi Folks,

    So had a recent marginal increase in my light chains. Been to see Doctor today and although he’s not overalls worried at the moment at the numbers which are approx 102. He did discuss if they increase again that he may want me to go on Kyprolis or Carfilzomib. Apparently I qualify because it’s a biochemical relapse which is essentially…[Read more]

  • willjames2 replied to the topic 7 Years ago Today in the forum General 3 years, 6 months ago

    Phil,

    That’s awesome, well done!

    Onwards and Upwards

    Kind Regards

    Scott

  • Hi Emma,

    I was 41 when diagnosed with lambda light chain myeloma and after 4 x cycles of CTD, I had an Auto SCT followed by a RIC Allo SCT (donor transplant).

    Should you wish to discuss anything about your treatment, I’d be happy to tell you my experiences.

    You can email me directly on scott.mckenzie2@btinternet.com and I’d be happy to chat on…[Read more]

  • Thanks Peter,

    I have lambda light chain myeloma. I have had Auto and Ric Allo SCT’s and I’ve been in remission (after 4 cycles of CTD) since approx November 2013. I consider myself to be very lucky and coped extremely well with the treatment I had.

    I have since emailed my Doctor so I’ll see what follows, however as you say, they may not be…[Read more]

  • Thanks Peter,

    I have lambda light chain myeloma. I have had Auto and Ric Allo SCT’s and I’ve been n remission (after 4 cycles of CTD) since approx November 2013. I consider myself to be very lucky and coped extremely well with the treatment I had.

    I have since emailed my Doctor so I’ll see what follows, however as you say, they may not be…[Read more]

  • Nat,

    Many thanks. I’m going to give the hospital a call tomorrow and try and get some answers, I have also since found out that light chains can sometimes be elevated because of illness etc. I’e flu or a cold.

    I’ll post back when I know some more.

    Kind Regards

    Scott

  • Hi Folks,

    It’s been. A while since my last post because luckily I’ve been feeling so well.

    I got home from work tonight and I’d received a letter from the Hospital following my last 3 Monthly check up. All seems ok, however my light chains have increased marginally to about 108.

    This was a bit of a shock because I’m used to getting letters…[Read more]

  • Hi Folks,

    It’s been. A while since my last post because luckily I’ve been feeling so well.

    I got home from work tonigh and I’d received a letter from the Hospital following my last 3 Monthly check up. All seems ok, however my light chains have increased marginally to about 108.

    This was a bit of a shock because I’m used to getting letters…[Read more]

  • @bajabell

    Richard, just read your post on Facebook which was posted yesterday. I know have replied before, but just wanted to reiterate how important good news stories like yours are to the site. Positive stories gives us all hope and this must not be underestimated in anyone’s fight against MM. 12 years, that’s awesome!

    All the best, Scott.

  • willjames2 replied to the topic 3 Years on… in the forum Under 50s 4 years, 11 months ago

    Hi Dean,

    I’ve too have had tandem SCT. Auto then Ric Allo within 6 months. If you want to discuss then please email me on scott.mckenzie2@btinternet.com

    I’ll then give you my number and we can chat whenever suits you.

    Kind Regards

    Scott

  • willjames2 replied to the topic 3 Years on… in the forum Under 50s 5 years ago

    Angela,

    Great to hear your hubby is doing so well and its great that he can chill out and enjoy life. Good luck on the Holiday, sounds fantastic!

    Kind Regards

    Scott

  • willjames2 replied to the topic 3 Years on… in the forum Under 50s 5 years ago

    Michele,

    Thanks for the reply.

    5 years…that’s awesome!

    I know there are a few with lengthy remissions and they must be celebrated, if only to give hope and comfort to people who are not that far down the road and are uncertain for the future.

    Keep fighting the good fight!

    Kind Regards

    Scott

  • willjames2 started the topic 3 Years on… in the forum Under 50s 5 years ago

    Hi Folks,

    Its been a while since I have visited the site but just thought I’d share my thoughts.

    Today is 3 years exactly to the day, since being diagnosed at the age of 41 with MM. I wont lie, my world collapsed that day, however my family and friends got me through and for that I feel eternally grateful.

    I feel especially lucky because after…[Read more]

  • Holly,

    Sorry, correction my Allo was done in June 2014 (not 2015 as stated above…typo).

    Kind Regards

    Scott

  • Hi Holly,

    My name is Scott and I’ve not been on here for a while. I came on today to see if there was any information on the Immunotherapy treatment mentioned in the news today.

    Anyway I digress…I have had both the Auto and Allo (RIC – Reduced Intensity Conditioning). I was diagnosed in Aug 2013 at the age of 41. At the time I had broken…[Read more]

  • Hi Misterboy,

    It’s been about 8 weeks since the visual disturbances started to happen, however, it has eased. It’s still not perfect, but better.

    I did have a CT scan and that came back clear, so not sure what’s caused it, Specialist thinks it may be stress to do with work…so in short it seems to be getting better.

    I was diagnosed in Aug 2013…[Read more]

  • Hi Folks,

    I know this is a little clichéd, however I have the quote below on my wall in my office at home and look at it every day. I compare this quote with the struggles with treatment pain and worry which we face, but bravely continue on, no matter what myeloma brings.

    “Let me tell you something you already know. The world ain’t all su…[Read more]

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