[willjames2Participant]

Jan and Eve,

I'll discuss with the Doctor on my next visit. I have actually had a good couple of days however as I said I'm on the Dex so I think this is helping and decided to take the morpheine sulphate, diazeapam and paracetamol as required throughout the day. The only fear is when I stop the Dex again after this four day period within the cycle then I'll deteriorate again and the pain will come back hence the reason I'm taking all the painkillers I have been prescribed instead of struggling on without taking them all and hoping I can manage. No good in trying to be a hero when in pain!

Eve's comment is interesting though with regards to the Steriods how they can destroy muscle but fight cancer. I have been trying to get up out of my chair about once an hour and have a slow walk around the house to exercise a little and hopefully this will help going forward.

As Eve said the drugs are addictive however I'm not too concerned about this at the moment (although I have only been on them a short time) I don't have an addictive personality and although I recognise I'll need to probably reduce the dosage slowly however I don't think I'll have an issue coming off them as soon as my back feels strong enough to manage without.

When I visited the clinic last time the Doctor said that from the results of the 'skeletal survey' they had done they had only found a couple of tiny holes within my skull and apart from my lower back where I had some lytic lesions I was pretty much clear every where else at the moment which I found to be quite encouraged with. Although the holes in the skull worries me the Doctor seemed quite relaxed and said that he expected to see them in the skull and that they would heal. I'm sure the Zometa will help with this going forward which I'm having again come Friday this week.

Thanks for the useful info again guys, it's much appreciated.

Regards

Scott;-)

[willjames2Participant]

Hi Jan,

Thanks for info. It seems like you have had it much worse than me… and here I am feeling sorry for myself! I too have lost height. I used to be 5 ft 11" however when I was measured recently at the clinic I was only 5 ft 9" resulting in the loss of a couple of inches, this surprised me.

When I said I believe that I had fracture of L2 & L4 I'm not exactly sure because no one has really explained. The very first Doctor I met at Tameside mentioned this but also mentioned that the Sacrum may also be fractured. He got this info from the images the Clinic at Menorca provided (however the clinic admitted themselves that their equipment wasn't the most up to date so the images weren't fantastic). i also think this Is because its a secondary thing to to the Myeloma and they seemed to think it will heal itself with time. I think I need to discuss in further detail with the Doctor when I return to the clinic. I too am scheduled for Zometa again on the 20th September.

Funnily enough I have a reasonable day today however I've just started taking the Dexamethasone again so I'm wondering if that helps with the pain? The Doctor said it may do. I have also decided to take the diazepam and if I'm a bit sleepy then I'll have to put up with it.

Just out of interest have you been prescribed Calcium Tablets? The Doctor said that he may put me on them when I return and I wondered if that would help.

Hope you are feeling better.

Regards

Scott:-)

[willjames2Participant]

Jan,

Thanks for the post. We have discussed with our Kids Teachers and they have assured us they will look out for any behaviour that is out of the ordinary. Both are good kids so we shouldn't have any issues however you never know how it will affect them longer term. They have been great so far however I still look well so the only issue they see is my lack of mobility caused by my bad back.

The info on the possible future side effects is useful and I wondered myself when they may kick in.

Regards

Scott:-)

[willjames2Participant]

Dai,

Thanks for the post and the encouragement. Your right, in time hopefully I will be offering advice however at the moment I know very little about Myeloma so feel like I can't contribute as of yet.

I need to get onto my 'Mantra' as I'm sure it will help me going forward. I'll get back to you when it's decided.

Regards

Scott 🙂

[willjames2Participant]

Mark,

Thanks mate, appreciate the bulldog spirit and will keep in touch.

Cheers

Scott:-)

[willjames2Participant]

Wendy,

Thanks for the post. Yes, the team at MRI are superb and I'm due back in two weeks which will coincide with the end of my first cycle. Also on TEAMM trial for antibiotics or placebo (not sure which) but its all good. I'll sign up for anything me!

I'll look out for you when I'm in clinic.

Cheers

Scott 🙂

[willjames2Participant]

Dick,

My Kids have been great. My Son is 12 and Daughter is 15. They are good kids and are quite mature for their age (especially my Son) and we decided to tell them from the outset thinking it was better coming from us than them finding out on the grapevine in our small town that there Dad was ill. However they don't know the full 'ins and outs' of the details etc. They know I'm not well, that we will have rough times however we are trying to remain positive. We want their lives to be as normal as possible. As you said we'll fill them in on on detail as time goes by so they can absorb little by little.

I'm off to hospital this morning for a quick check up after being on my CTD for 4 days so I'll check back later…got me thinking now though, I too need a 'mantra' so I best get my thinking cap on for something that is apt for me and my life experiences.

Thanks, Scott.

[willjames2Participant]

Hi Dick,

Thanks for the reply. You are so right in the consideration I have to have for my Wife and close family who we are relying on so much a the moment to assist us. They too have to live with the illness and I'm sure when I'm not in earshot my Wife will cry and get upset but she remains as strong as possible whilst I'm there. Having saying that, just this week she bumped into an old friend at the Supermarket and broke down telling her when her friend asked how we all were, but this will ease with time as you said.

Hope all is well with you and yours.

Thanks, Scott:-)

[willjames2Participant]

Angie,

Thanks for taking time to reply. All words of encouragement are welcome at the moment at this vulnerable time. Sorry to hear about your Mum. But at least you are still affected enough to actively contribute to the site and support others who are still affected by Myeloma which is brilliant.

Thanks again

Scott 🙂

[willjames2Participant]

Etta,

Thanks for the welcome. I hope your Shoulder is better soon and you will be back to typing like a gooden in no time.

Kind Regards

Scott:-)

[willjames2Participant]

Eve,

Thanks for the information, will do. I'll post to let people know how I am getting on and also check on how my new fellow members are progressing.

Hoping everything is going well for you and your Hubby.

Kind Regards

Scott:-)

[Author]

Posts