woo1967

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  • #117516

    woo1967
    Participant

    Thanks Jan.  I went to see my nurse about the pain in my hip and thigh, and also mentioned some shoulder pain which she felt was muscular. That was 4 wks ago, 2  wks ago saw my gp as shoulder was so painful. She prescribed anti inflammatory tablets and Co codomal.  Said if no better in a week steroid injections. I phoned myeloma nurse who said no to injections. Have been to clinic today to find my paraproteins are at 69? ?? And have a high mch?? Got to have a full skeletal survey and back to see the consultant in 3 wks,  I’m thinking this could be the beginning of treatment??

    #113041

    woo1967
    Participant

    Hi All I got my results last week – its smouldering Myeloma – back for further blood tests in four weeks – at the moment my paraprotien level is 15% – dont really understand what this means – the consultant said he needs to build up a picture of how  slowly/rapidly it is developing.

    Finally returned to work Monday after losing my mom in January and going through all this – phased return for two weeks – but picked up a cold which started Saturday – I have been told if I feel under the weather I must go and see my GP – how do I find the balance? Do I ignore the cold or go to the Dr’s??

    Thanks all so far for the advice given.

    Thanks Wendy

    #112845

    woo1967
    Participant

    Thank you Mavis, got my results  and  I have smouldering myeloma taking this as good news. I would appreciate any advice anyone can give.

     

    Thanks, wendy

    #112736

    woo1967
    Participant

    HI Richard & John

    Thank you for your responses, I am due to get my results from tests on Wednesday.  I was hoping that I would be told it was smouldering or MGUS, although from the research I have don on here I am now thinking otherwise.

    I initially used google to research, then a friend of mine who works at a Bupa hospital gave me the information leaflet from Myeloma uk – I have not looked anywhere else since as this seems to be the most informative and best site.

    I will let you know how it goes Wednesday.

    Thanks again, Wendy

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