[yorkshireladParticipant]

FWIW I have absolutely no doubt that the drug supplied from India made by Natco is legit. Natco is itself a huge pharma and a few years ago it was engaged in a patent battle with the owners of Revlamid (at that time it was Cellgene) in the US, and it was this court case that was settled out of court and which led to the concessions which Mulberry has mentioned.

[yorkshireladParticipant]

Hi I would echo all that Mulberry has said. I underwent SCT just over 2 years ago, and I have been buying Natco Lenalidamide from India for the period since then. I am coming up to 2 years on the drug, and my consultants know all about it and are very supportive. It only costs about £750 per year, so it is affordable for most people – although it is now available on the NHS. (Roll on the day when the NHS can source it from India too and save itself a fortune).

All the best

[yorkshireladParticipant]

Hi Mulberry, I am not one to post on forums normally. But i want to do my little bit to help others find out about the possibility of sourcing from India. Nearly all of us who are in remission could benefit from taking Lenalidamide, and nearly everyone could afford the £700 odd cost of it from India. There is a risk of side effects from taking Lenlidamide/Revlamid, of course. But that would not stop us taking it if it was available on the NHS.

It is so easy to go down this route, if anyone is interested. i just want it to be more widely known, so everyone has the chance to do the same as you and I have, if they choose.

[yorkshireladParticipant]

I should add that there are others on the forum who have used the version from Dr Reddys without problems as well.

[yorkshireladParticipant]

Good morning All, I know that many are frustrated by the current position that (outside Scotland) Lenalidamide is not available on the NHS as maintenance after SCT. Everyone should know that you can buy Natco Lenalidamide by post from India from a variety of sellers.

Order online, sent to you by Post.
No prescription is required.
No need to travel to India.
It is perfectly legal.

I have now been on Lenalidamide for 15 months, and it has cost me £670 for the last 12 months including shipping costs. (Plus £30 odd in bank transfer fees). The biggest risk IMV is that the vendor takes the money and never sends the goods. Well worth the risk.

My consultant knows about this, and considers that it is a good move (although they are not allowed to promote my sourcing it from India). One consultant confirmed that the Natco lenalid is identical to Revlimid as far as they understand, (which is the case with all generic drugs) and the only reason not to take it would be the risk of side-effects which go with taking Revlamid/Lenalid. That is being monitored anyway as part of regular checks/bloods.

This is a drug which is simple to make, has been on the market for over 20 years now, and there is no reason why we should not all be taking it in the generic form available from India. (I cannot comment on other version from Dr Reddys – but both Natco and Dr Reddys are massive pharmas valued in the billions and I know that others on this forum has used their version too).

[yorkshireladParticipant]

Good morning All, I know that many are frustrated by the current position that (outside Scotland) Lenalidamide is not available on the NHS as maintenance after SCT. Everyone should know that you can buy Natco Lenalidamide by post from India from a variety of sellers.

Order online, sent to you by Post.
No prescription is required.
No need to travel to India.
It is perfectly legal.

I have now been on Lenalidamide for 15 months, and it has cost me £670 for the last 12 months including shipping costs. (Plus £30 odd in bank transfer fees). The biggest risk IMV is that the vendor takes the money and never sends the goods. Well worth the risk.

My consultant knows about this, and considers that it is a good move (although they are not allowed to promote my sourcing it from India). One consultant confirmed that the Natco lenalid is identical to Revlimid as far as they understand, (which is the case with all generic drugs) and the only reason not to take it would be the risk of side-effects which go with taking Revlamid/Lenalid. That is being monitored anyway as part of regular checks/bloods.

This is a drug which is simple to make, has been on the market for over 20 years now, and there is no reason why we should not all be taking it in the generic form available from India. (I cannot comment on other version from Dr Reddys – but both Natco and Dr Reddys are massive pharmas valued in the billions).

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