[yvonneseParticipant]

Hi Helen….have just seen your posts re your appointment and blood tests . I really doThe mental and emotional anguish you go through. You cannot just put it to the back of your mind. I have had my latest blood tests done on Monday ready for my appt with the Haematologist next Weds 4th March and I am having a real struggle mentally this time. I don’t know if it will always be this way with us feeling like this but its like having the sword of Damocles hovering over us. It really is not much consolation at times for people to say “it may never happen”. I hope you get good results Helen but I know exactly how you feel. It really does help to let it all out on this forum as we really are all in the same boat.

Sending you love & hugs

Yvonne xxx

[yvonneseParticipant]

Hi Kath,

I am new to this site and know just how you feel. I was diagnosed with MGUS last May and have had regular blood tests since and been reviewed by Haematologist regularly. My initial IgA level when found last May was 11 which went up to 13 by time I’d had my bone marrow biopsies, etc. It then went down to 12 then 10 but had gone back up to 11 at end of December. My next visit is 4th March so I am starting to feel a little edgy again. So as I an says it can go up and down….its when it keeps going up that us the problem. It is something that is always at back of my mind and it is difficult to explain to other people how you feel. Hopefully we will be okay and remain stable…..but there’s always that “what if” feeling so I empathise with you totally. We must try and remain positive.

Take care

Yvonne x

[yvonneseParticipant]

Hi Chrissie….I think we have all helped each other. To know that others are going through the same thing and having the same fears and feelings takes some of the loneliness away. Its not nice but we are on a bit of a rollercoaster ride with ups and downs. We can be there for each other.

Take care…..love & hugs

Yvonne xx

 

 

[yvonneseParticipant]

Hi Stanley, thank you for your comments. I will indeed try to take your advice on board re “putting it in cupboard”. To be fair I am usually too busy at work to think about it. Ironically I work in a busy gp surgery so am always dealing with other peoples problems which is a good thing I suppose. I don’t know why but its just in the last few weeks that its preyed on my mind. Its a case of just having to go with it though. I hope that your treatment is successful and you are feeling better soon. One of the drs I work for said there are new treatments being developed all the time so as you say we must stay positive.

Take care

Yvonne

[yvonneseParticipant]

Hi Chrissie,

Thank you for your comments which I can relate to totally. Its very difficult some days to carry on as normal with all the worries going round in your head. We’ll just have to go with it and hope for the best. We’ll give each other as much moral support as possible. I already feel better for talking to you & Helen.

Many thanks….keep in touch Xx

[yvonneseParticipant]

Hi Helen,

Thank you for your reply. The Myeloma nurse that I was referred to at hospital downloaded an information sheet from this site and said it was the best one to go to for up to date information. I haven’t really discussed any of this with anyone in my family really either…..just Steve & my 2 sons and daughters-in-law and that’s just the basics. My work colleagues obviously know but as far as they’re concerned I’m okay….its just Mgus. Its like its just sort of hit me emotionally …..it might never become Myeloma but it could. Its a bit like being between a rock and a hard place. Its good to be able to get this out of my system speaking to people who are going through the same thing and can empathise. My next appt at hospital is March 4th so I am starting to feel a little edgy again.

Please keep in touch.

Thanks

Yvonne x

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