Thank You so much for responding to my request for somewhere to be able to chat without feeling negative an guilty.
Like you Sarah its all a bit too raw at the moment, and my grief like yours is tinged with anger that some people are still drawing breath when my dearly loved husband is not. Peters Father is a typical example of this.
We will…[Read more]

Hi Sarah
Dont beat yourself up, the IF word is the biggest little word I have encountered .
Peter actualy was on Velcade but it stopped working. I keep asking similar questions about the next best thing but I am slowly coming to understand that we have not a minute longer on this earth than the grand master has planned for us.
The timing…[Read more]

Dear Julie
I am so sorry that your mum has lost her battle with this dreadful disease. I hope you take comfort from the fact she was able to achieve her last wish and die at home. May she rest in Peace now she is free of pain and discomfort
Love MIn

Well done Nettie brave lady
Min

Its under General with the title Free light chains increase after sct
Sharpy can be found under her name and its her last post I believe spelt it wrong above sorry
Min

Dear Mari
Please read Sharpie 's last post it makes lots of sense her explanation of pp going up as told to her.
It may help to calm your fears. I know all too well how easy it is to get on the panic step. When you have more information you will feel much calmer. I hope
Love
Min

I know how it is Sarah,
I came home from my daughters on Monday to an empty house. No one to tell of my week away.
Been trying to put a new blind up in the kitchen and its taken me all day.
Peter was so handy about the house, and you cant find a workman for love or money just to put a blind up.
Just had a big bubble and weep first one since…[Read more]

Dear Gill,
there is a BBC programme Rip Of Britain with angela rippon gloria honeyford and they are worth a try.
then there is BBC watchdog programme they love this kind of thing.
In the meanwhile does Stephen get Disability living allowance? if not he should as well as the Motability side of it.
peter got all of it and his Macmillan nurse…[Read more]

Keith Peter used to get what they called 'cover' when having transfusions to stop an alergic reaction. Just an anti histamine IV. Might be worth asking about.
Min

I know where your coming from Roz, being alone with no one to chat to or make a cup of tea etc is very different to how I imagined.
Not sure if i can get used to this quiet life who do I moan to when theres rubbish on the TV! Who is going to make sure I come home safe when I take the dogs out. Its very hard.
It will take some getting used to.
Min

Absolutly Brilliant new Dai… get on and enjoy your life.
Min

Yes Bridget I do feel a lot better but not sure it will continue when I get back to being n my own. But I plan to do lots of test drives. Unfortunatly my new car has to be capable of totoing 3 labradors so no racy sportscars for me. My old dog has been with me this week and had some extra attention during which I noticed that he is going deaf, and…[Read more]

Lovely pic of the fence and two ears Eve, dont be shy !

Hi Bridget
I am pleased to hear you have finaly got the pain under control. Did I read somewhere that you are going to start Bendamustine? not up to date after my long break. Home tommorow and back to reality.
Hope all goes well for you
Luv Min

Hi Eve

Why dont you start up a support group? if there is nothing available this web site may be able to help you to organise one!
It will give you something posative to achieve that everyone who needs it will apreciate. Just a thought
Min

Dear Gill and Stephen
I am so so sorry to hear about Stephens prognosis, I know how desperate you must feel and how much you will be pinning your hopes on Revlamid. Rightly so, no one knows what will and what will not work with this bast*** disease.
Peter was on it for a 6 months and in the 1st 4 months the results were briliant we went on our…[Read more]

Time to get back to the subject matter of I love…… you all.

Dai,
You made me cry, mind you so does everything at the moment.
I thought I was prepared for all this.
How wrong, the reality is far worse than anything I imagined. Cannot motivate myslelf. Cannot sleep, cannot do much of anything and slowly going round the bend as cant remember much of anything.
Given that this darned cancer is incurable,…[Read more]