Best of luck for Michael, hope it works. don't know about the Dex at lunchtime though, bet he is still awake now with it! Cant beat talking to the TV, doesn't answer back, bit like my dogs!
What else does he take with the Bendamustine? anything we haven't heard of before? Peter is recovering from his mega dose of melphalan and no doubt will…[Read more]

Its all good news Dai, and I can understand your being a little disappointed but…..Everything you read about these drugs are that the smaller the dose the better the result because smaller doses prevents the side effects which make the quality of life worse. The side effect I mean
I think I have read or listened to something on here, about…[Read more]

Hear hear Its very useful for hospital appointments but Peter is not venturing very far these days. Although he did drag me to the cinema earlier this week for his Harry Potter fix.

Min

Hi Peggy
Good luck with your mammoth pill party! someone wrote on here to put them all in a carton of yogurt then they go down easier.
£40 0000 Because your worth it…..Revlamid is so easy to use from the point of view of your not tied to attending a clinic or day unit twice a week. so much less tying. But still makes you very tired…[Read more]

Hi Sarah,
On heavens if its not one thing its another with these men of ours. They cant just get one thing wrong with them it has to be a dramatic illness and one that drives us the carer out of our mind!
Blue badge… 5 days best thing we ever got out of him getting the blu*y illness. Now he has it you need to go on and get the other things…[Read more]

Hi Martin,
Sorry to hear about your Dad, my husband has MM and kidney damage from it, along with bone damage.
In truth I think only a Dr can give you the answer you want, but even then as mm is not something like High blood pressure where they know if they give you x then the result wilt be Y .
MM is far more complicated and unpredictable. But…[Read more]

Sorry Jet typing error,don't watch the screen oops it was GCSF injections, just to help the stem cells that are being transplanted and make a few more.
ps like the bold bald look it suits you
Min

Hi Jet.
Good luck for the SCT and hope its a walk in the park so to speak. Peter my mm man, had his stem cells given at 9am and was home by 3pm and did all of his recovery at home. Stupid man even cut the lawn when he got home. But no one told him he should not. He had a week of being off his food and very tired where he slept a lot but…[Read more]

Hi Eve
Thanks for asking we are plodding along, Peter's appetite is improving daily and he is doing some small weights to try to build up his strength. Blood appointment tomorrow to see if he needs another bag of blood or two. I feel most likely as he can sleep for England. Then another two weeks before the next clinic appointment.
Im back on…[Read more]

Hi Eve
We have been going through a ton of food lately most of it into the 3 dogs!
I bought everything he normally likes and he didn't want it, or anything else. Then I made him porridge with milk that had gone off( I swear I didn't know) but it gave him 24hrs of D and S lots of vomiting and loo runs. Oh dear was I in the dog house.
On the…[Read more]

Hi John
You are so lucky that you asymptomatic, long may it last as the alternative is to start on a regime of medication which is rather debilitating in many ways.
The main thing is you are being monitored and if your situation changes they will step in and start treatment. Just make sure your fit as its possible to be, and the intensive…[Read more]

Dai
I can just picture you looking like a spotty pin cushion. Knowing what peter looked like when he was in a few weeks ago after several attempts at canulas then them wanting blood while he was hooked up to a drip. He was sick to death LOL of needles. His arms are now fully recovered just in time for the next lot.
I hope you remain temperature…[Read more]

Hi Gill
I was once very differnt to how I am now and similarly Peter was too. He was a man with no temper, and slow to rile. Now he responds with the occasional burst of anger.
I was the one who went off it often, but I seem to have mellowed. I have changed but I defy anyone affected in any way by this blu-dy disease and not find themselves…[Read more]

Hi
Ive just been away on a quick breakaway, to my daughter and grandchildren in Warks. Cant see any activity on Bridgets facebook so sent her a message.
Min

Hi Dai
Amy obviosly inherited her talent from her dad, you must be very proud of her and I am sure some time soon you will be on a plane to go watch her wow the crowds.
It sounds like she has a very exciting life and hope it continues for quite some time.
Love the sound of her voice and your accompaniment
Cheers
Min

Hi Claire,
Its good that your mum has been diagnosed early, as many are not and the treatment for a late diagnosis is not pleasant. But in you mums case. It sounds like she has a smouldering kind, which means the professionals watch and wait.
There is no point in starting treatment if it is not yet necessary. Far more pleasant for you mum and…[Read more]

Hi Susanah
Im really interested as indeed will others on here in the same position as Gordon and Sarah. My husband is what I thought of or think of as at the last chance saloon. Having has a failed sct, velcade and revlamid. All of which worked for a very short time. His current treatment fills me with dread for what happens next. But it is…[Read more]

Hi Sarah,
I empathise with how you must be feeling. When Peter got his bad news it was devastating for both of us. But there are other options out there and going back wards to CDT or in Peters case MDT is the way for us( the royal we here!) having tried Revlamid which was good, but not good enough for the aggressive cato mm
Given the past few…[Read more]

Brill Keith
Have a good break, see you there probably as Peter is going in about the same time
Love MIn