Ha Ha Ha,
Peter had that all thru his Revlamid. Much better now on Thalid. (for now) it wont last never does. We have got over the shock now and just getting on with it as usual.
Time I was in bed or no gardening will be done as I wont be able to get out of bed! Sounds like the kitchen will be to your liking. Im just going over the…[Read more]

Wow David,
Busy busy busy. Have a wonderful time. I learnt how to drive in the dark when a rooky PC in HOIK( thats how we pronounced it)
Morpeth is not too far from us and if on your way back south you go via the Tyne Tunnel call in on us if you like for a coffee. Take it easy and dont get too tired.
Love Min

Oh Bridget I do envy you the nice weather, warm here but not wonderful.Kitchen will be just right and hope your able to have some input into it… Eve see the forces benevolent fund for help with getting allowances for slim.
I had decided when I retired/redundant I would have a new kitchen, last weeks fright at the hospital made me decide to put…[Read more]

Hello Again.
Do I think that Peter got his mm being near to fuel from aeroplanes????
No I do think all the many injections he got to go to the Falklands and anywhere else may not have helped.
But in reality, there are many people on here who have never been on or near a plane or ship so how did they get it?
In Peters case I think his cards…[Read more]

Hi Eve
Peter had just finished his 6 months of injections for blood clots caused by the medication.. It took about 6 weeks before they diagnosed that then.
Realistically we have to understand that medicine is not an exact science and they do often get it wrong. But why do they get it wrong when you can tell them what it is… if I take one of…[Read more]

Thank You everyone for your support, Its good to know we are not alone on the roller coaster.
The delightfull dex kicked in today and delivered a feeling of a well being and big appetite(much needed due to recent weight loss of one and a half stone) and the nasties.. Had a little moment of shouting and loss of temper…………him not…[Read more]

Hi Angelina,
When Peter was first put on Tramadol and codeine we went to stay at my daughters and he woke up in the morning telling us he had been talking to a variety of dead people relatives and friends who had all been giving him advise on how to beat his kidney failure etc.
We thought he had gone doolally! He cried like a baby because…[Read more]

Its Brilliant Dai, and and and you have a Minnie, the only other minnie I know is married to mickey mouse!
Cant wait for it to be published as you have me hooked. Good Luck and can I have an invite to the booker prize please?
Min

Hi Alistair
I can recommend the Freeman in Newcastle as it has a new purpose built cancer department and two wards and a day ward not to mention lots of absolutely wonderful and understanding staff. A hospital is only as good as the staff who run in and the commitment of the team in Haematology is amazing. We have met some lovely patients too…[Read more]

Hi Roberta,
I fully agree with Jet, let them go and get on with your life.. If your husband questions it, tell him that this is the new you, having beaten the odds with your MM your not going to attempt to beat the odds with his family….
We did this about thirty years ago when my husbands parents neverreally acknowledged my children as…[Read more]

Hi Bridget,
Is this the first time you have had the benefit of a Macmillan Nurse? I cant praise them enough as Peter had one what seams like an age ago but its actualy 18months. She was brilliant and not just there for the patient, she looks after the family too, understanding how they are affected by cancer diagnosis. We have not seen her for…[Read more]

Hi Dai
I have a very vague recollection of Peter feeling absolutely washed out and worse on his week off when he was on velcade…….he feels similar now with Revlamid! whats that all about then. He did have several 'days off' the medication as really beats the heck out of you. Hope they get to the bottom of it as its seen off your immediate…[Read more]

Hi Liz,
Thats what we are here for and glad he is now comfortable and of course so are you now that your mind is at rest
luv Min

I have to own up, I am not that clever; and only resposible for posting a thought that was sent to me.
Im afraid my only contribution to the words was posting it………. I am currently trying to find joy and build memories, This verse made me wake up to some strong thoughts
Min

I am so very pleased that life is back to 'normal' for you both.. Good news is always a boost for those in utter turmoil. Long may it continue for both of you. Nicki,
Love Min

Hi Liz,
I concur with Jet and the professionals are always the place to go for pain.
As an afterthought. If hubby has had further injections of GCSF after his SCT.I know Peter had several to get some 'numbers' raised and had forgotten the pain that the injections bring about; could it be the same pain that he got when he had the GCSF for his…[Read more]

Hi again Ali,
You just concentrate on yourselves for the moment and when your not quite so stressed Im sure you will be able to contribute in the same way all of us were when we were in your position.
When they get to the cause of the problems with Guys movements and mobility they will do whatever is needed to make him as comfortable and…[Read more]