Hi Angelina,
I do believe in the' mumbo jumbo' do you know a number or whatever for stress anxiety.
I am not being patronising, but if there is an equivalent 'Angel Charm" for the terrific amount of stress I am putting myself under I would love to learn more.
Thanks
Min

Hi Bridget
Im awake, sleepless and ready to listen Thats what happens when your retired and don't have to get up for work in the morning……… You know how it is in the middle of the night and everything looks bad? After a good nights sleep everything looks better.
I think you have seriously overdone it with the housework and your body is…[Read more]

DAI
I only just worked out how to play it……….duh. I had several unsuccessful attempts and gave up but when I saw other posts I realised it must work.
It sounds extremely professional and you look incredibly healthy in that profile photo.
Big well done
ps bought Adele 21 today its brill first CD I have bought in years!
Min

Dear Eve
I feel for you and the frustrating and annoying situation you find yourself in.
1st things 1st go and find the pals (patient liason) department and jump up and down. Make very loud noises and make sure a lot of people are listening.
Make your voice heard in the ward when you see some of the major problems dont worry if the other…[Read more]

Hi Eve
How is married life now your an old married woman?
I do hope slim is on the mend and out of the 'deep water'. I cant imagine how you have been able to deal with his recent hospital stay.
I am just hoping you too are ok. Its so stressful when your loved ones laid up in hospital, Im sure he is in good hands and or on his way home soon.…[Read more]

Hi Bridget
Weird aye, does that mean your a one off or one of many weirdo's. Just having mm consignes mm sufferers to weird as no body knows what the heck it is!
Im sorry to hear of your rise in light chains; but is that significant if you don't have Light chains? Oh its all so complicated, and don't know if I want to break the public…[Read more]

very Funny

Hi Bridget,
Hows it going with Revlamid? Peter is 'feeling ' really good on second week of 4th course. 1st week still washes him out a bit. But once its over he picks up really well. Still very 'snotty' especially at mealtimes and if he hits any cold air. Have to keep him out of the freezer aisle. HIs back has been really good since he…[Read more]

Hi Dai
If you go to the home page of of this site you will see an article on subcutaneous velcade from the Lancet Oncology, which hopefully will add some arrows to your bow when you see him/her. Good Luck and who knows you may be a groundbreaking Velcade patient.
Regards
Min

I would not be too concerned as long as he is not trying to rive his skin off! sounds like and allergy to one of the medications he will be getting post transplant perhaps an anti biotic. If the health professionals are not concerned they probably recognise it. Following the high dose chemo, the body is very sensitive to all kinds of things that…[Read more]

Hi Eve.
Don't they just drive you mad with worry with there attitude to illness.
I buy fizzy water, flavoured still water and 7up. The 7 up is supposedly approved as being full of beneficial salts. Don't know how true that is but, Peter was up all night with a sort of bug. Difficult to know if its a sickness and trots or just the normal start of…[Read more]

Looks like my dog Ben Happy Easter
luv Min

Brilliant news Gill, Im very pleased for you both,
Min

Hi Sarah,
He had developed DVTs as a result of velcade in both legs and they went off into his lungs where they said there was so many clots in his lungs there were too many to count. Revlamid is a drug your on potentially and hopefully for ever. Thrombosis is one of the side effects so as long as he is on it he will be on heparin. 6months of a…[Read more]

Gill, I think that is an excellent idea, would it be a mother hen party? as we fuss around them like mother hens.
Jo The chill was caused by the IV immunoglobulin they gave him to allow him to go on holiday, he had a really bad fever from it and woke up bathed is sweat then had to change the bed it was so wet' The chill turned into cold and…[Read more]

Hi Jean,
Its good news mostly then, I had a wry smile when you mentioned red rag to a bull. These men can be such a pain in the kneck when it comes to their health.
Enjoy you Easter and your new Grand daughter and family. Don't waste your energy worrying until you have to, thats where I went wrong. Im in a permanent state of worry mostly…[Read more]

Hi Sarah
I have strong memories of administering Peter GCSf before his harvest, ugh it was awful ; and he had dreadful bone pain and back pain in particular, then of course he blamed me for giving it to him. He is now on daily heparin injections for the rest of his life following pulmonary embolisms from velcade. I refuse to do them when he…[Read more]

Hi Debs
Peter is like Bridget with a constantly snotty nose while on or off medication. He is not a sufferer of sinus but I have been plagued by it and the best relief is a bowl of boiling water and a towel over the head and sniff in the fumes. Clears the sinus's at no cost. Friars balsam is a good addition to the water but a bugger to wash off…[Read more]

Hi Caroline
I have been where you are now and its not pleasant. As Bridget says there are other forms of pain killers and getting the dose right is not easy.
I am sure once he is re- assessed for a more appropriate pain killer life will improve. Meanwhile keep your sanity intact with us whenever you need to
Love Min