[zm31Participant]

Hi,

I’ve recently been discharged from haematology and getting routine bloods checked every 6 months to check my light chains: (I haven’t specifically been told this is MGUS but from what I’ve read it does sound like it).

Hot flushes and being hot in the face is what prompted my visit to GP in first instance before being referred to hospital because of the light chains picked up in my blood. So I’d say yes this maybe me a symptom of MGUS although I’m not medically trained. I hope someone else can shed some light

[zm31Participant]

Hi all,

Wanted to drop by & thank you all for all you’re advice, support& guidance on what has been a difficult few weeks.

My haematologist has now discharged me back to my GP. He said my igA was slightly over the normal (it was 50) and my mri shows signs of wear & tear but at this stage does not indicate myeloma. He said my liver enzymes are sky high and will need to discuss this with my GP & arrange a liver scan.

However he wants my proteins levels monitored by my GP every 4-6 months which has left me slightly confused.(

[zm31Participant]

Hi Mulberry,

Thank your for you’re reply and I’m so pleased to read you’re feeling well.

Did you have any symptoms prior to diagnosis? Did it take long for your diagnosis once the GP had carried out the further blood test? Also how long after diagnosis Did you start treatment?

Apologies for all the questions, I’m trying to be prepared. I’m going to my result appointment alone so hoping to be as prepared as I can be.

Thank you 🙂

[zm31Participant]

Hi Rosary.

Thanks for the reply it’s been really helpful & apologies for the delayed response.

He didn’t mention what type of scan I would be having and that I’d just be having a scan. So far I’m still waiting for this to arrive in the post. I’m back there on the 27th so I’ve now wrote down some things to ask so I’m not walking in with my head above the clouds this time.

I’ve seen my GP again today as I’m still not feeling to good as I’m sweating a lot and she did confirm from the blood results they did that my light chains in my blood were raised along with Beta 2 microglobulin were raised too.

She however did not tell me by how much these were raised or why they were abnormal so I guess it’s now just a waiting game till I see the haematologist again.

I’m hoping these are raised for some other reason but from what I’ve searched on google and myeloma pages it seems to be a high indicator of myeloma.

[zm31Participant]

Hi all, back from my appointment. I had more bloods done and a full body X-ray. He also said I need a CT scan which will follow in the post.
He said my protein levels were high but this could be due to inflammation possibly. I didn’t really ask many questions as I was unsure of what to ask. But I’m back there again in the 27th for my results.

Thanks for the advise I really appreciate it.

[zm31Participant]

Thank you for replying sue.

Everything is just a bit of a blur at the moment. My mum is coming with me to my appointment tomorrow to be extra ears for me.

My liver enzymes were abnormal too on my blood tests but I’m sure the haematologist will be able to advise me why this is I hope.

Thanks for getting back to me x

[zm31Participant]

Thank you for your reply Matthew. I really appreciate it. I guess I’m just sat here really worrying about as I can imagine you all have been at some stage and if not still through your individual journeys.

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