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  • aurora became a registered member 7 years, 11 months ago

    • Hi Sally, your situation seems similar to my initial diagnosis. Radio therapy was considered for my plasmacytoma but when they detected it had spread they opted for treating the whole underlying MM. The first month or so was an emotional journey for me, with many downs with occasional ups. I suppose I didn’t feel any loss of control because I largely just took the guidance of the consultant and team. That was about two and a half years ago. The initial chemo treatment went well…no real problems apart from the dexamethasone making me a tad hyper to start with and a tad depressed when stopped. June 2014 I had a stem cell transplant. I’d been forewarned that I may feel pretty unwell and under the weather for maybe a year, well, maybe I was lucky, but for me it wasn’t too bad at all….now (touch wood), I’m still in remission and feel great. Long may it continue :-)…..and good luck to you, the future can still be bright…