I don’t think myeloma patients are being paranoid or hypochondriacal when we worry that pain may indicate return of active myeloma.
There are 2 types of relapse. Biochemical relapse is the more common, which is identified by blood results, but it’s also possible to have biological relapse, evidenced by CRAB features, most frequently new bone lesions/pain.
Personally I’ve had scans on 3 occasions during my ‘remission’. My consultant hasn’t made me feel unreasonable wanting them, although nothing myeloma related was found. The final one turned out to be at the point just before blood tests revealed my relapse, so actually it was really useful to have had the scan.
I wouldn’t feel properly reassured by a nurse saying blood tests are ok therefore you can’t be relapsing. I hope your Dr is as pragmatic as mine and arranges testing.
We patients HAVE to listen to our bodies.
