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• 30th July 2012 at 8:21 am #93246
  
  eve
  

  Participant

  Hi Everyone

  Well as you know Slim is now coming up to 2 months past SCT.
  He has at last turned the corner,last week I was wondering when we could see an improvement,and he is starting to pick up.

  We went to see his consultant and he has taken just a bit longer to improve,Platelets still at 50 but going up all the time now,he said its because of all the chemo over a year,plus pneumonia.he has BMB middle of next month and we will know by the end of August,then see if he gets maintenance or not,on trials.

  What I was not told or realised is because the body system is so low,any other problems a person has tend to show,and cause aches and pains,so you mind set is,is this the Myeloma when its just,aches and pains from old or new things that are now causing problems with your body.
  Another learning curve coming on.:-P

  I am even thinking of booking a holiday,so things are looking up,September is going to be a wonderful month,in many ways. Love Eve

  30th July 2012 at 2:38 pm #93247
  
  DaiCro
  

  Participant

  Hi Eve,

  Two months already… it may seem slow to you but I think time is flying.

  Slim's whole system has had a reboot and kickstart and he is bound to develop aches and pains… some old, some new but there will be other changes as well. My hair (what I have left) went back to the tight curls of my youth and twenties… I was having problems with my eyesight and found that my eyesight had improved to a point nine years ago!!! 😀

  I am sure that Slim's platelets will soon start moving up and he will start to look and more importantly feel, much better and more like his own self. It works at different paces for different people but it took me about nine to ten months before I could say that I was fully comfortable with my 'new' self.8-)

  Enjoy your holiday… book it and go.:-)

  Dai.

  30th July 2012 at 3:19 pm #93248
  
  tom
  

  Participant

  Hi Eve and Slim

  Great to hear you are turning the corner Slim 😀
  I had things that felt like MM but was told all clear its just an old/new ache so I got on with it but still nip off to Doc's when I feel different 😀

  Have a great Time looking and Booking your Holls.

  Love Tom "Onwards and Upwards" xxx

  30th July 2012 at 4:48 pm #93249
  
  BADGER
  

  Participant

  Hello Eve

  good news that slim is now feeling much better i am sure the news will be good and at last you can both get away what a relief light at the end of the tunnel at last:-) Regards to Slim
  Love Jo x

  30th July 2012 at 6:09 pm #93250
  
  jmsmyth
  

  Participant

  Hi Eve

  Great news about Slim and long may it continue. Go on go book your holiday – enjoy yourselves. Might even get that game of scrabble in.

  Love Jean x

  31st July 2012 at 2:19 am #93251
  
  Perkymite
  

  Participant

  Your post Eve has brightened up my early morning, it now being 2.17 a.m. You tell Slim to keep going the way he is and he will be alright. I agree with everybody else book the holiday 😎

  Kindest regards – vasbyte

  David

  31st July 2012 at 11:15 am #93252
  
  wendyduffield
  

  Participant

  Hi Eve
  so pleased that Slim is picking up and getting better from his SCT. I started to feel alot better around the two months mark and apart from lots of colds and coughs feel back to normal (whatever that is) now (11 mths post transplant)

  Wendy

  31st July 2012 at 9:36 pm #93253
  
  gina45
  

  Participant

  lovely to hear some positive news Eve,
  you book that holiday and have the time of your life
  Gina xxxx

  1st August 2012 at 2:40 pm #93254
  
  eve
  

  Participant

  Hi Gina
  Lovely to hear from you,I hope you are enjoying life,know you must be missing mum,first year the hardest.

  As for Slim feeling lucky that we have got this far,has had to up his pain killers but better to have some quality of life,than be constantly feeling bones aches and pains.the damage plus other complaints coming to the fore.

  End of August and we should have some idea,:-) love Eve

  1st August 2012 at 7:28 pm #93255
  
  Vicki
  

  Participant

  Glad to hear things are on the up Eve, enjoy the holiday!

  Vicki and Colin x

  2nd August 2012 at 11:10 am #93256
  
  mhnevill
  

  Participant

  Dear Eve

  I am so glad that Slim is making improvements at last. It has been a long haul for you both, but obviously worth it if you can now contemplate booking a holiday! I do hope your plans work out.

  Here's to the future!

  All best wishes to you both.

  Mavis x

  2nd August 2012 at 9:18 pm #93257
  
  Helen
  

  Participant

  Hi Eve
  It's good to hear you so chirpy and that Slim is now travelling in the right direction, have to get those holiday brochures out now.
  Love Helen

  3rd August 2012 at 4:22 pm #93258
  
  eve
  

  Participant

  Hi Everyone

  Well Slims getting there,as he improves I worry less,will be happy once he has BMB and results as we have been told this is now the only way to tell how the myeloma is in the bones:-P so it will always be a bit of a worry.

  He has his line out on Monday and Wednesday it,s up to London never ending'

  We thought once the 2 days for blood test was finished,we would have a bit more freedom,but August is filling up with lots of medical appointments,Slims general health has taken a dive with having SCT this I did not expect,but its because his system is not functioning fully,he has had to up his pain relieve to function,
  London on Wednesday,going by train,if he is up to it,otherwise I will be driving in.Eve;-)

  3rd August 2012 at 7:17 pm #93259
  
  tom
  

  Participant

  Hi Eve and Slim

  Am pleased to read Slim is getting better, and trust me you never stop the worry when you have been told you have MM Eve its something that we all have to cope with these days.
  Slim will be better when the line is removed less to get infected so thats good 😎

  Hope Slim is up to going on the train to London as it will make it easier for you wont it.

  Love to you both

  Tom "Onwards and Upwards" xxx

  6th August 2012 at 9:14 am #93260
  
  Mari
  

  Participant

  Morning Eve,

  so glad to hear that Slim is on the up now after his SCT. Like Dai I feel that two months is not really all that long and it does take time for the body to recover from such a huge shock as an SCT.

  I throughly recommend the holiday when you can get away. Steve's platelets were at 50 when we left, as you know it was touch and go if he could fly but they did give permission at this level. His haemoglobin and red blood cell counts were also very low, below 10, and he felt very washed out in the first week. Added to this his hair was coming out in clumps after the cyclophosphamide, I wished we had taken his razor to just take it all off. We did a great deal of sitting around, reading books, in that week. However by the second week he felt so much better and started to swim, gaining strength every day. He has gone into work today but he will be in Kings on Wednesday for some of the work up for his SCT. Maybe he will see you there, although I know he has appointments all over the hospital, heart kidneys etc. I wont be with him as I have to go up to see my Dad in North Wales as he is not at all well,

  Good luck, love Mari x

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