Hi Jo
It is a struggle on my own; especially now I've only one carer and have to pay myself. So I try to manage with around 80hrs to 100hrs a week, plus what my Brother-in-law does for me to get me to town, hairdressers and places like that.
I've got a few disabilities, I've got Asthma,Arthritis in my hands, legs spine ,Neuropathic pain in my legs, my left knee won't bend and I've got lots of trapped nerves. I manage around my home with my stick, cannot stand or sit too long cos I get stuck but to go out I have my wheelchairs.
If I get more care I have to pay more and to get individual benefits from the council I'll have more to pay than they will give me, so I'm out of pocket and have to beholden to their rules where doing it my way I can have the care when I need it, except weekends because my carer/pa has weekends off. After being disabled for so long you learn to live with it and I'm trying to stay independent. When my legs give in all together and I have to use my chair in the house then I know I can't manage alone because I will not be able to push myself and carry a cup of tea. So fingers crossed I slow down again.
I miss Michael like mad too, some days I just am not here I'm just somewhere else and another day I cope.
Thanks for asking after me
Love to you all
Roz