I'm starting to get pretty nervous. Tomorrow I'm off to Kings to have the Hickman line fitted. They want me to stay in after that as Day 0 is Tuesday and I get my chemo infusion then. Stem cells to go back in later in the week. I guess I'll be there two or three weeks to part recover. I'll keep the post updated as best as I can as it may be useful to others heading for this treatment.
Good Luck with it am not gonna say don't worry because you can't, but I will say its a doable , I sit here in remission and drug free and am on six month consultations now.
Eat eat and eat some more build yourself up as soon you won't be able to face food.
Wi Fi about £15 for a month in Kings good reception,Am I right in saying its your second SCT????
Wishing you the best,Slim and I Found Kings very efficient although food yak,but could not give him enough ice cream and milk,plus lots of pots,staff very nice..Eve
Best of luck with your forth coming sct. It's not something anyone would look forward too, try to think beyond that and your recovery. Best of luck and hope you sail through it
Wishing you an "event" free SCT. Exactly this time last year my Mum had hers, she's now in remission and enjoying her life. Head down, grit teeth, whatever it takes to get you through. You will soon be back home.
A huge thanks to all for the support. I showed this to Linda (my better half) and she thought it is just fantastic how everyone supports each other. Day 1 at Kings just about over. Hickman line in place etc etc etc. tomorrow the chemo and I discovered that is not day zero. That will be when the stem cells go back in so I actually have two day zeros as that will happen on Thursday and Friday. In view of the fact my kidneys are badly impaired Wednesday will be a rest day to help flush the chemo out before the transplant. They seem to know what they are doing here thank goodness!
Eve- this is my first SCT. I declined the operation when I was first in remission back in 2011. I chose maintenance therapy instead but that only worked for a year. As I'm running out of options I thought I ought to give this a go now I'm back in remission again.
We are in the same boat Jo what with our damaged kidneys. Maybe if I get through this OK you might consider the SCT option as well. Anything to keep us going!
Vicki 11 years, 2 months ago.
