[StanstanParticipant]

Hi Everyone,
We haven't been on for a long time but I have been reading it all.

Charlie is going to be let out at the end of this week after his Stem Cell Transplant.

To what extent do you all clean up? Should he be in a room alone? What about the dogs and children? AND we have just sold our house after it being on the market for months. It is a lot to handle all at once.
Should I just ship Charlie off somewhere until it is all over?

Nightmare.
Do you sleep in the same room as them when they come home?

Any advice would be great.
Thanks so much.

Love Mary :-S

[meganjaneParticipant]

Hi Mary,

I am so glad to hear Charlie will be home soon.

When Phil came home from his SCT I cleaned the house the day before and then when he was home I had dettol wipes that I used daily on the light switches, door handles and surfaces. I cleaned the kitchen counter before and after I prepared food as well. Once Phil was home I didn't worry too much about dust but cleaned the bathrooms and kitchen daily until his neutrophils had recovered.

I still slept in the same room with Phil in case he needed something in the night. I was able to leave him on his own, I returned to work three days after he got home and he managed fine, he slept most of the day while I was out.

I can't help with the children and dog question but I am sure someone else will pop along that can answer.

I hope the move goes well, that is an added stress!

Megan

[jmsmythParticipant]

Hi Mary

I did the same as Megan when Frank came home. I stripped our bed and disinfectened (???) it from top to bottom. I had wipes and dettol sprays strategically placed. I only allowed our four sons and their families to visit. I kept the young grandchildren away from him for a couple of weeks. I left hand sanitiser in the hall and Anyone who came knew their hands had to be done. They also knew to keep away if they had as much as a sniffle. Frank was a little paranoid about the dog, he casts a lot so he was not allowed into any room that Frank would be in – fortunately he loved the garden 🙂 to be honest I think I went a little over board I was paranoid but thank God he's been infection free.

Take care and enjoyCharlie being home 🙂

Love Jean x

[tonyfParticipant]

Hello Mary, glad that Charlie has had his stem cell transplant, obviously all has gone well. I had mine in February this year, was out after three weeks. My wife cleaned the place, we had wipes in the loo and bathroom and odd places around the house. We have a very active border collie dog, my real regret was that I couldn't take him out for a few weeks. We didn't stop him wandering about but I didn't stroke him much.
We didn't get to hung up about disinfecting or sterilising everything.
My wife slept in the spare room for a few weeks simply because I was quite restless. We didn't have many visitors for a few weeks.
I was on NO medication , only antibiotics, I kept them going for ages, months.
Sounds like you're going to have 'fun' if you've sold the house! Stress!!!!!!
After maybe 6 weeks I started walking the dog, driving short distances and gradually getting back to normal.
I am on the myeloma XI trial but opted for having no maintenance drugs, so, no drugs, no treatments, next clinic3 months time.
Good luck with everything, don't get paranoid about it, Charlie will be fine.
Regards
Tony F

[tomParticipant]

Hi Mary and Charlie

Well I bet your all pleased Charlie will be home soon 😀
We were Ok Elaine done all the cleaning bits but am sure she never went over the top??? I cant recall to be honest, I think it was just clean cos I wasn't in it for 16 days Ha ha.
Elaine had the wipes and all that stuff, we slept in same Bed when I came home as its nice to have a cuddle, spent about a week in Bed, Elaine going back to work after a couple of days She left me a Pack up and a flask of hot coffee (it was just like going to work ha ha)

As for the Dog (and he is called Charlie) Elaine Bathed and de fleas him, but he was still wanting cuddles cos he aint seen me for 16 days, he slept on our bed when Elaine was at work.
That's what I can remember us doing you must do as you feel is correct, just keep germs and germie kids and adults away even if they think they might have a cough or cold

Good Luck but remember its still not over Charlie will have a fair few months neede to get back to being Fit-ish

Stay well

Love Tom Onwards and Upwards xx

[StanstanParticipant]

Hi Everyone

Charlie is now home. He was in for 2 weeks and 5 days. I took all your advice and so far he is fine. He had no sickness, runs or sore mouth and – no temperature. The consultant said that this happens to only one in ten.
He is doing things, coming for dog walks.
Thanks so much for your advice. Will keep you posted on the next hospital visit.
What would we do without this forum, it really helps.
Love Mary & Charlie 🙂

[jmsmythParticipant]

Hi Mary

Glad to hear Charlie is back safe and sound 🙂 19 days that is good going I think that was the record in BCH. Frank was in for over 4 weeks and besides the "power failures" he's doing good. Going on a cruise on 13 Sept. firs holiday in over 2 years.

Charlie hope you go from strength to strength and get on with with you're and Mary's lives. My very best wishes to you both

Well done
Love Jean x

[DaiCroParticipant]

Hi Mary and Charlie,

If you will allow me I will echo Jean's 'Well Done'.:-D

The important bit is now over and I encourage you to take things very, very easy and ensure that you keep germ-laden family and friends away… however much loved and however much accent there is put on 'it's only a very small sniffle'. 😛

Don't overdo things and Charlie, listen to your body… and Mary: learn to lip-read what his body is really saying.;-)

Enjoy your recovery, both of you.8-)

Dai.

[tomParticipant]

Hi Mary and Charlie
And a well done for getting through it near trouble free 😀 keep well its still a little bit uphill yet but you are doing great.

Love to you both

Tom onwards and upwards. Xx

[StanstanParticipant]

Thanks Megan

All is going well so far. We are walking the dogs. Charlie had fun with the children. My daughter in law cleaned everything the day he came home.
So far, so good. Fingers crossed. Dreading the move, something we could do without but there you go, these things are sent to try us.

thanks so much Megan x x

[StanstanParticipant]

Hi Tom & Dai

Thanks for everything, still a trying time but Charlie is doing so well at the moment. Thanks for all the advice and love. This site is so good for support. Just hope infection stays away. He has to go on a nebuliser once a month and we will be randomised again next week – dread that in case it is lenalidomide – nightmare another PE we can do without. Maybe it will be no medication.

Thanks for being there. Will let you know how it goes.

Love Charlie & Mary – Upwards and Onwards x x 😉

[StanstanParticipant]

Hi Tom
So far, so good. Upwards and onwards, fingers crossed. Touch wood.
Power of positive thinking. So glad you are both OK. that was wonderful news.

Love Us x x:-)

[tonyfParticipant]

Well done Charlie, keep it up.if you are concerned about being randomised onto lenalidomide next week when you go to the clinic why not ask if you can have nothing. After my SCT I decided to have NO maintenance, so I am still on the myeloma XI trial, still being monitored but have no drugs except penidronate monthly infusion and a daily Adcal. If things go cockeyed there will be drugs and treatment available, and I'm still on the XI trials.
Good luck with whatever you decide.
Regards
Tony F

[StanstanParticipant]

Hi Tony
It must be wonderful being on nothing. How long have you been more or less drug free? How are you feeling? Are you in remission? Where are you on the trials. You look well.

Best Wishes
Charlie:-D

[tonyfParticipant]

Hi Charlie, when I came out of hospital in mid/end of february after my SCT the only drugs I had were antibiotics, they kept me on them for ages. At my 100 day check up in June I opted for no maintenance drugs. They stopped the antibiotics then, I restarted the penidronate and the adcal. Had one 5 day course of antibiotics in July to beat up an infection, we are off on holiday soon, the specialist gave me a box of antibiotics in case I get a temperature and infection to take with me. And that's it.
I have an interim blood test in September, but will have that done at the GPs. Next appointment with the specialist early November.
My paraprotien level has been at 1.8 since the stem cell transplant, other bloods seem there or there abouts.
They still say I'm in partial remission!
Like I said I am still on the myeloma XI trial.
I'm being treated at the Leicester Royal infirmary, I have nothing but praise for evryone, but most of all to my young GP who made an early diagnosis, I think she saved me a lot of troubles, problems and heartaches, judging by some of the problems folk who contribute to this site have had.
Again, good luck with everything.
Regards
Tony F

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