[eveParticipant]

Hi Pam
So sorry about your dad,I know what you mean,when you look at other postings and this mm has no age limits i think the youngest is 29 on this site,also young mums with very young children.:-(
To me a life is a life and does not have age barriers,you still loved your dad and cared for your dad and did not want to see him with any more to cope with.which is understandable .
As a cyber friend,I wish to say,take comfort your dad did not have to go through the chemo,and i hope he died peacefully, i am sorry for your loss Eve

[brochoParticipant]

Dear Pam I am sorry your dad did not have longer with you, but as Eve said he was spared having to go through treatment which would have been hard for him . He will always be with youso treasure your memories Take care Bridget

[PerkymiteParticipant]

Hi Christin and Meike,

I think I am the other David that was Dai was referring to. An English David, well ok my Dad was a Scot but I try to keep that a secret, my family originating from Ashover in Derbyshire 1850 and before.

I note from your posts that we David?s have all got something else in common, apart from a most delightful name that is we all have great supportive families.

At least the decease has been caught before it did any severe damage to David?s bones. I woke up on July 12 2009, a day that will go down in infamy, and broke my neck getting out of bed. I was within 2 mil of becoming a paraplegic. I now have no 4th vertebrae and my head is held up with internal scaffolding around what is left of my neck. I am 68 and today I have just finished the shopping got the upstairs to clean and the garden to weed and mow before ?the Boss? comes back from her part time job.

I liken MM to a journey, I note David uses the phrase ?on the path? and it is very appropriate. Because, you will be travelling along a very bumpy path, sometimes it will seem it is full of holes, that appear from nowhere, and always uphill other times it will seem an evening stroll in the sunlight. My South African relatives gave me a good Afrikaans word to use ? Vasbyte ? it means Bite Hard and when you think of it is so appropriate for MM. Sometimes you just need to grit your teeth, dam the torpedoes and get on with it.

On the site we have coined a phrase for Dex ? dexattitude – please remember if it affects David badly what he says is NOT HIM. It is Dex twisting his mind around.

My only other bit of information is to make use of the site, It is an excellent facility, bags of information, which is UP TO DATE, It also has a resident Myeloma UK nurse who I understand is excellent. You can ring her, for free, anytime for help or information. No doubt you will do what we all did and that is surf the net (rather appropriate for David ? Surf that is) but remember that much of the information is out of date and based on old statistics, lastly, there is no Golden Bullet cure ? no matter what anybody says.

I wish you all the very best of luck on your journey and I hope, in the nicest possible way, that our paths cross many times in the future.

Kindest regards ? Vasbyte

David

[MeikeParticipant]

Hi All,

Sorry we have not been here in a while?things have been a tad busy. Thank you all for your kind and encouraging words! David has now completed his 4th cycle of Velcade and by the look of it will be doing an other 4 before preparing for SCT?

The last couple of weeks have been difficult for David. His pain levels in his back have increased dramatically and after having been referred to an Orthopaedic Surgeon was called into Hospital last Sunday to have surgery to some of his crushed vertebrae. He finally had his surgery on Friday and is slowly recovering from that. He is still in allot of pain but we are hoping that it is post Op rather than bone pain.

It is incredible how different MM effects each individual. No path is the same, but all are bumpy with large obstacles and deep valleys along the way!

David, I really like this new word- Vasbyte – I will be telling my David about you and your journey, I think he will take strength from that! I have to agree David is a delightful name! He also is a delightful person usually!! Full of life and fun.

Pam, I am so sorry for your sad loss! Dads are very special for their daughters no matter what age they are! I know my girls absolutely adore their daddy!

Take care!

Meike

[MinParticipant]

Hi Meike
My husband had a balloon kyphoplasty on Friday last, this is the second time he has had one but on this occasion he is suffering from more 'discomfort' mostly in his ribs but he says its muscle pain.
Probably from being thrown well not exactly thrown but you know what I mean! over from his back to his tummy for the op.
When we were seeing the surgeon some months ago about this op, I mentioned to him the possibility of having the most recent form of kyphoplasty where the balloon is left in place as a safeguard to leakage.
He totaly [i]poo poohed[/i] the idea and said absolutly not. >:-(
When I collected Peter to go home…. Lo and Behold he had had the new type. On one of the two they did.
Which is evident by the fact that the wound( I have to put clean dressing on) is a single hole with one stitch.
😛 and he has a picture frame drawn on his back. Whats all that abut then but he is happily saying he is no longer feeling lop sided or leaning forwards
Day 3 now and little by little the muscle ache is receding .
Shotrly he will forget about it when the agony of melphalan tommorow is infused.
Got a bed and going in at 3-30pm today
Regards
Min

[CarolBradley1Participant]

Hi
Just a quitck note to say welcome to you and your family and sorry your Dad is having such a rough time of it.
You and your Mum are doing a smashing job and I am sure your Dad must feel so grateful to have the support of such a lovely family even if he can´t always show it when he has to take some of the medications – they do make people feel rather moody etc. I am afraid but they do help to make us better. Sometimes my family felt as if I was behaving like a stranger when I was taking steroids because I got cross so easily and have never had a temper before – as soon as I was able to stop taking them I got back to normal thank goodness!
Best wishes to you all
Love Carol xxx

[CarolBradley1Participant]

Hi
So sorry things have not gone as smoothly as they should have done.
RegaIrding the Myeloma 11 trial I have been on it for the past year. I can only tell you that in the main I have been very well looked after and the only time when I have not felt quite so confident was when I went for my sct and was not under the direct care of my own specialist and her nursing team. I think for me the trial has worked well and I the only down side has been the fact that I have had to have a few more blood tests/bone aspiration etc. but I have felt it to be a worthwhile thing to do.
Why don´t you have a chat with the myeloma nurse on this site ? It might help talking to a professional who is one step removed from your dad´s medical team.

Best of luck
Love Carol

[tomParticipant]

Hi Christin and Meike

I also have not been on here for some weeks:-( still doing ok just having a kitchen fitted:-/ am sure it will be Ok when its all done and dusted:-D

Am Pleased David is doing good also, am sure it will continue 😀

Love and Hugs to you all

Tom "Onwards and Upwards" xx

[Author]

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