[lafleckParticipant]

My husband has been on monthly Dara maintenance now for nearly 9 months, following his second line of treatment (DVD). He routinely gets debilitating diarrhoea, which at times is so sudden it is interfering with his day to day life. A pattern of 7 to 10 days post treatment seems to have emerged. He takes Loperamide as soon as this occurs and his GP has suggested that he introduce a daily capsule from day 1 of the cycle. This is what he will do from his next treatment. Has anyone had a similar experience? Thank you.

[davidainsdaleParticipant]

Hello lafleck

Sorry to hear that your husband is having problems which may be linked to Dara maintenance. I assume that it’s the subcutaneous injection he has in the tummy every 4 weeks.

I’m now on Cycle 47 of Dara maintenance and fortunately no real problems except for the dexi fatigue a few days afterwards.

I know that some patients on dara maintenance have their treatment given by IV on a drip, takes a lot longer but may be worth you exploring this as an option.

Hope this helps.
David

[davidainsdaleParticipant]

Hello All

Quick update on 2nd line maintenance. Started cycle 50 of monthly maintenance this week. Bloods and pps all normal. Came home and popped open a rather posh bottle of red wine as a small treat on reaching my half century!

Hope this helps.

David

[mulberryParticipant]

Congratulations David!
I’ve just started cycle 5, so still weekly appointments at the moment. I hope I get to cycle 50! That must be about 3 yrs 3 months so far?

[Author]

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