Hello

This topic contains 7 replies, has 7 voices, and was last updated by  eve 12 years, 6 months ago.

Viewing 8 posts - 1 through 8 (of 8 total)
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  • 17th October 2011 at 7:19 pm #105609

    titch
    Participant

    I'm elaine
    Was diagonised with myeloma 22 months ago.I started treatment in august,very nervous and mixed feelings about it all.Felt abit different today tied and my legs/back felt weak, also got a rush/spots on top of my arm,don't know if it can be side effects or just throught nerves.Went last week for my check up and the chemo is effecting my blood counts so i'm on chemo fortnightly for now.I glad i looked on this site,as taken me along time to do so.

    17th October 2011 at 10:15 pm #105611

    mhnevill
    Participant

    Hello Elaine

    I'm glad you have decided to join this site. I am sure you will fimd it very helpful. You haven't said which treatment you are on. If you share this I am sure there will be folks who can compare notes about side effects with you.

    Do be kind to yourself and don't try to do too much while youa re on the chemo.

    All best wishes.

    Mavis

    18th October 2011 at 9:23 am #105610

    Perkymite
    Participant

    Hi Elaine, Welcome(?).

    You will find this site very helpful and it is packed with good information. Be wary of surfing the WWB there is a lot of old out of date information out there.

    Plus, there are some really nice people here, I think it is one of the prerequisites for having anything to do with myeloma! 😀

    Kindest regards ? vasbyte

    David

    18th October 2011 at 12:56 pm #105612

    Debs
    Participant

    Hi Elaine,
    Welcome to the site and I hope it is as helpful for you as I find it. I think it is full of lovely, caring people!
    I hope you cope with your treatment. It seems that each treatment is different for everyone so it is hard to say about side effects, but just make sure you mention everything to your consultant/ nurse specialist. They should be able to help.
    Good luck
    Debs

    18th October 2011 at 2:24 pm #105613

    titch
    Participant

    It's good to know about the site,also nice to know you can chat to people who are going through the same as yourself,thank you david and debs so much for the messages it helps alot knowing your not alone.I have written the things in my note book and taking it along with me next week so i can tell the consultant.

    Thanks again
    Elaine

    18th October 2011 at 2:55 pm #105614

    BADGER
    Participant

    Hi Elaine

    glad you have found us you will find this site so supportive full of kind words and advise you are not alone we all care here. When I had CDT they gave me an anti B which gave me a rash so they had to stop it the rash looked like German measles it was called ciprofloxin perhaps it is something like that causing your rash
    Keep in touch
    Love Jo

    19th October 2011 at 1:18 am #105615

    Gill
    Participant

    Hi Elaine

    It's a great idea to write things down as you think of them It is my husband that has mm (Stephen diagnosed late 2008 when 53)

    We never remember to take a list of questions with us and always say (afterwards) "oops we forgot to ask……"

    Fortunately Stephen's consultant is more than willing to accept direct phone calls.

    We haven't tried him at say 3 in the morning yet HMMMMMM:-/ Would it go to answerphone:-0

    Do keep posting on here you will get a huge amount of support from everybody

    Best wishes Gill

    19th October 2011 at 8:32 pm #105616

    eve
    Participant

    Hi Elaine
    Just popped in to say welcome,I am a carer and do not know how i would have managed without this site and all my cyber friends they have helped me so much through some bad times,so its all been worth while.and you also gain so much knowledge,and helps you to know what is going on in other hospitals.
    Also what treatments are available,and any other help that is out there.

    Best Wishes Eve

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