Introduction

This topic contains 12 replies, has 10 voices, and was last updated by  konrad01 13 years, 11 months ago.

Viewing 13 posts - 1 through 13 (of 13 total)
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  • 2nd January 2011 at 3:18 am #84114

    konrad01
    Participant

    Hi Everyone,

    I've just found my way to this excellent site and am looking forward to participating in this discussion board.

    I was diagnosed with Beginning Myeloma in December 2010 after my alert GP spotted an anomalous anaemia value in a battery of blood tests that were primarily concerned with a review of my Irritable Bowel Syndrome [IBS]. She referred me to the local Consultant Haematologist. At present I have no symptoms and am on a two-monthly "watch and wait" programme.

    I am 66 and a semi-retired consultant on training policy.This involves policy development across the EU, working from home with some regular travel to meetings. I (try to) keep that part of my life to no more than 50%. I recognise that I need to get more fit and active and am fortunate in having a garden that provides plenty of opportunity for outside work. I'm planning to restart beekeeping this year. My wife is very supportive and my elder daughter (a paediatric physiotherapist) keeps me in line.

    John

    2nd January 2011 at 8:29 am #84116

    Perkymite
    Participant

    Well a warm welcome John to the site nobody "wants" to join. You are right this is an excellent resource provided by MyelomaUK. You will find we are a friendly and supportive bunch here and the information on the site first class.

    Well done to your Doctor for picking up the anaemia link, my own doctor missed it and I subsequently had all sorts of problems when I developed a tumour in the neck which I could have avoided.

    Kindest regards
    David

    2nd January 2011 at 8:55 am #84117

    konrad01
    Participant

    Thanks David,

    It's good to feel welcome! Having engaged in these communities professionally for over 10 years, it's an interesting experience to participate in a learning and supportive environment.

    As people may have noticed, my original post was early in the morning. I've had a tendency for many years to wake in the small hours when my mind is at it's clearest. Being a "lark" is something that I've learned to value.

    Happy New Year to all,

    John

    2nd January 2011 at 10:26 am #84118

    Perkymite
    Participant

    You will find that many people post early mornings, I did myself for some time. It is not because they are "larks" like you, but, because they are on Dexamethasone which keeps them awake 😀 .

    kindest regards
    David

    2nd January 2011 at 11:08 am #84119

    jmsmyth
    Participant

    Hi John

    I am sorry that you have joined the site but You are in the right place. Welcome. As David says the people on this site are excellent. My husband was dignosed 4 years ago – (attended doctor for one thing and they found this bl**dy disease.) He was lucky it was found so early – he visits consultant every 2 months and they keep an eye on him. So far his bloods are within "range" – (not allowed to ask questions I get my answers here).

    I hope all goes well with you
    Best wishes Jean

    2nd January 2011 at 11:36 am #84120

    tom
    Participant

    Hi John

    A warm welcome to this warmhearted group,sorry you had to join, but you will get some great support on here when you need it, and at strange times in the night (Dex)

    Lets hope the two monthly watch lasts for years 🙂

    Tom "Onwards and Upwards"

    2nd January 2011 at 5:38 pm #84121

    kaychappers
    Participant

    Hi John I would like to say welcome too.
    I have just joined the site and everyone is extremely helpful and supportive. I too hope you keep those levels low for years.

    Kay x

    7th January 2011 at 7:36 pm #84122

    gina45
    Participant

    Hi John and welcome to the site. Its my mum who has myeloma she is 71. Everyone on this site are lovely and helpful.
    Take care x

    8th January 2011 at 10:35 am #84123

    brocho
    Participant

    Hi John I would like to add my welcome too , this lovely group of people are the best support you can get . Best wishes Bridget x

    12th January 2011 at 9:44 pm #84124

    mhnevill
    Participant

    Hi John

    From another newcomer, welcome. I do hope that the "wait and see" phase lsts long!

    I travelled on an ambulance today with an MM survivor of 11 years so all is not grim.

    Best wishes.

    Mavis

    24th January 2011 at 11:22 am #84125

    KWilson
    Participant

    Welcome. I trust you will soon be 'in the swing' and getting your treatmnet started ok. It's good that you got a diagnosis when you did.

    xxxxxxxxx

    24th January 2011 at 5:11 pm #84126

    BADGER
    Participant

    Hello John
    welcome to this site I dont expect anybody really wants to join but now you are here you will find much help and support and you will learn much about the condition more than most clinics will tell you.
    Good luck with any future treatment
    Regards Jo 😎

    24th January 2011 at 5:25 pm #84127

    konrad01
    Participant

    Thanks Jo and everyone,

    I really appreciate your kindnesses.

    Let's move on …

    John

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