Hi onlyme,
I had my sct 2.5 years ago and I am still in remission at this moment. I will try to list a few tips for you,
1. Sucking ice cubes whilst having high dose therapy before receiving stem cells back can prevent an event of painful mouth ulcers later, also use the mouthwash povided.
2. Good hygiene is very important, so try to shower daily and keep hands clean, to stop infections, maybe using flip flops in the shower to prevent picking up infections on the feet.
3. Let the nurses know as soon as you feel any sickness as they have lots of different anti sickness drugs, don't suffer in silence !!!
4. Take in lots of things to do , eg magazines, crosswords, books etc.and also lots of pj's or nightdresses as she will need them.
5. Always listen to your body, when you are tired rest, and don't be worried about telling family and friends not to visit if you don't feel like talking.
6. If her hair starts to fall out, don't be afraid to ask the nurses to shave it all off , as it is very distressing to keep seeing your hair on the pillow as it starts to fall out.
I hope these things help, and I am sure other people will help with other tips, I wish your mother all the very best with her sct, it will be all be worth it to feel reasonably normal once again.
Take care,
Sue xx
