I am so very sorry to hear the news about Keith, my condolences to his family.

Love Sue xx

Dear Sue,

I am so sorry for your loss, I know it's not easy to hear some things right now, but Michael is out of pain, and you have to look after yourself now.

I understand what you mean by all the attention going away after the funeral and leaving you alone, I lost my ex husband nearly 13 years ago ( not myeloma related) and I have since…[Read more]

I would also like to wish you all a Very Happy and Healthy Christmas and a Happy New year. Also remembering all the lovely friends we have lost in 2012 and sending warmest thoughts to the families who will be spending Christmas without their loved ones.

Let's keep the fight going in 2013

Love Sue xx

Hi Lorna,

Hope you and Mike are ok. Just to let you know you are not alone in feeling this way. Martin and me feel exactly the same as you and mike, cheated of our future together as we have only been married 8 years.
What we have to hang on to is the hope as a patient and carer that the future years will bring either a cure or longer…[Read more]

Wow Tom ! of course your intelligent enough, Let's hope you get through and win the big one xx

Hi Ian,

Try rubbing 'palmers' cocoa butter into them. I had this whenI was on Thalidomide maintainence. – neuropothy maybe. I tried other cheaper brands but only palmers really worked.

Take Care

Love Sue x

I am sooooooo pleased for you both, you must both be so thrilled.
Yes, Tom and Elaine I would be having a drink or two as well. Well done both of you,(maybe a nice candlelit meal too Tom !!)

Love to you both

sue xx

Hi Gill,

So glad to hear you are home and things with the stomach seem to be improving, my stomach is not too good at the moment as I keep getting really bloated. I will have to wait for the outcome of the colonoscopy I suppose. I also have poor eyesight since transplant and find I now have to have an eye test every 12 months instead of 2 years…[Read more]

Hi Gill

The gastrologist said there is 'no cancer'-thank God! However, I have diverticulitus and I have to have another colonoscopy (lovely) to check the large bowl/intestine incase there is an infection present,and also to see what the treatment will be.

I hope you are at home now Gill and feeling much better. I have my colonoscopy on 16th…[Read more]

Hi Nicki,
Great to here all is ok, I am now 3 years and 2 months post transplant and going well. I was advised to drink green tea by an indian lady in my local shop, I have a cup of green tea 3 times per day, let's hope it works eh? it does take some getting used to though, even better with a bit of honey.

onwards and upwards (as tom…[Read more]

Hi Mari,
Thank you for replying and sending condolences, I did not put a notification on this site as I felt it was not my place. However, I did tell all Sharons friends on the 'under 50's site'.

Like Penny, Sharon was so brave and battled so hard to stay with her husband and 2 young children, and I am so proud to have called Penny and Sharon…[Read more]

This is very sad news, having recently lost my friend Sharon Grainger to this awful disease, once again I have found this really upsetting.

Rip Penny, an inspiration to us all, far too young to die.

Love Susan Spruce x

Hi Gillian,

I am 3 years post sct and still in remission, I have also had problems with my stomach eg. I can't have chocolate, cream or ice cream or the next morning I know about it, I have the runs and stomach pains.

I have recently had an colonoscopy (not nice !) ultrasound, ct scan, barium meal and an endoscopy. 3 months ago my…[Read more]

Hi
I also wish Bridget all the very best with her recovery,take care bridget and keep strong,

Love Sue xx

Dear Michelle,

I am so sorry to hear about the loss of your husband and childrens father Phil, hang on to the good times and they will see you through,

love and thoughts

Sue xx

Hi Bridget,

I feel so frustrated for you, you are a true inspiration to all of us. I am hoping and praying for you in the hope they find some other treatment, stay strong, as I know you will !!
Love Sue

Hi All,

I drink about 2.5 litres of water per day and have done for the last four years since diagnosis. I use a water filter jug and a 2 litre plastic bottle, and drink it throughout the day. I also find that in the winter it is really difficult to drink water so I don't put it in the fridge as it goes down much easier when it not too cold. In…[Read more]

Wishing you all a lovely xmas and a very happy and healthy new year.

Love Sue xx

Hi Tom,
What lovely pics and I love your xmas tree. I tend to try to enjoy xmas as much as I can now, and put Myeloma on hold for a few days. My lovely hubbie is very 'bahh humbug' but I soon change that with a few special treats and my xmas stockings (nudge, nudge, wink wink !!) I must admit I think the run up to xmas is hard work, but all…[Read more]

Hi onlyme,

I had my sct 2.5 years ago and I am still in remission at this moment. I will try to list a few tips for you,

1. Sucking ice cubes whilst having high dose therapy before receiving stem cells back can prevent an event of painful mouth ulcers later, also use the mouthwash povided.

2. Good hygiene is very important, so try to…[Read more]