Hello Mavis
Thank you for writing to me and welcoming me to the site , which I think is brilliant. I have looked and responded to some of the other strands and again everyone is so open about what they’re going through, or have been through to which some are very positive and some not so . I appreciate what you said in regards to the staging as your right about it all being so individual and my dads nurse consultant also said all treatment is individualised and that it didn’t really matter either .
Do you mind me asking how long ago you was diagnosed ? And why didn’t you go for SCT ?
My dad doesn’t want to know too much about it all , he just wants to go with what ever the doctor says and has faith in them they are looking after his best welfare (which they are) he is hoping the horrible painful part of this journey will be over soon. We all do of course and will be grateful when we see some improvement in his quality of life .
Are you under going treatment at the moment ?
Best regards
Jennifer