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This topic contains 3 replies, has 3 voices, and was last updated by  Min 13 years, 12 months ago.

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  • #84107

    ron
    Participant

    Hi everyone

    My wife Christine was diagnosed with myeloma on 9th December and she has been on a course of chemo for 11 days. She is suffering from nausea almost constantly but the symptom that is most worrying me is her constant depressive state and extreme anxiety. This is of course understandable and the haematologist is referring her for psychological counselling but I wondered if others have experienced this and if so how long the state persisted. She is aged 69 and has hitherto been in excellent robust health, so the diagnosis has been a complete bolt out of the blue.

    Regards to all

    Ron

    #84108

    Eva
    Participant

    Dear Ron,
    I hope your wife gets the appropriate meds for the nausea. Until this happens, she's going to feel very anxious as she will feel out of sorts all the time. A diagnosis of cancer is always a shock. One of the things that each person has to decide is what their relationship is going to be with knowledge about their illness. Some people will derive great comfort from a chat with a myeloma nurse and perhaps with someone who has been down the same path themselves and has adjusted well. Others need to find out a lot about the illness and its treatments and won't rest until they've had a chance to do a lot of research. Perhaps your wife can only excorcise her fears by being explicit about them. Yes, it's awful to have this illness but there are treatments and life can still be very very good after diagnosis. It helped me a lot to read blogs written by myeloma sufferers. The acor list is very useful( type in myeloma survivor acor into Google, or type in mmfordummmies). Your wife will start to see that myeloma can be a journey that can be scary but that it us possible to feel hope and to be connected to others and to enjoy life.
    Best,
    Eva

    #84109

    Eva
    Participant

    Dear Ron,
    A book you might find useful is 'Journey beyond Diagnosis' by Greg Pacini. You can order it via Amazon.
    Eva

    #84110

    Min
    Participant

    Hi Ron
    Like you I am married to a MM sufferer. At diagnosis I found it very difficult to to bring Peter out of his withdrawn state. For quite some time he became rather insular and difficult to talk to about his illness. Eventualy he had a long chat with our Macmillan nurse and the myeloma nurse specialist. But it was not until he could see from various tests results that he was making progress that he had not been given a death sentence. The very word Cancer will put any one in a spin and she may be thinking some of the darkest thoughts.
    I suggest you contact your nurse specialist to get some medication to deal with the nausea, in turn she will possibly feel less anxious. Peters anxiety was mostly to do with catching colds and germs from well meaning visitors.
    She may have been warned that catching infections may lead to her being in hospital for iv treatment. Very worrying for a previously well individual.
    Don't wait until her next appointment to deal with things that bother her physically, dealing with mm is difficult enough without additional worry, help is only a phone call away and will always be dealt with promptly.
    After Peters first raised temperature he ended up as an inpatient, and was always angry with me when I said I was going to ring the hospital for advise. Rather have him in a ward getting treatment than at home getting worse. Was my motto.
    We are all here to help one another and we have all been where you are today, so don't be afraid to ask. There is often someone with the answer, or the advise you need on the rest of your joint journey.
    Min

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