ron replied to the topic Kidney failure aggravated by zometa infusions in the forum Treatment 12 years ago
Pleased to report that Christine continues to progress well. She last saw the haematologist 10 days ago, and he has since written to her to tell her that ceasing the zometa infusions has resulted in a noticeable improvement in her kidney function. Her blood tests continue to show a level of paraprotein which is too low to be measured, and she…[Read more]
ron started the topic Kidney failure aggravated by zometa infusions. in the forum Treatment 12 years ago
My wife Christine is in remission following CDT treatment, which was discontinued 9 months ago. Her paraprotein reading is very low (less than 1), and she feels well. All this sounds very encouraging and the only symptom, apart from the ever-present fatigue,is slight back pain which is contained with paracetamol. However, she has been receiving…[Read more]
ron started the topic Balloon Kyphoplasty. in the forum Treatment 13 years, 1 month ago
My wife Christine was diagnosed with mm 3 months ago and, although CDT treatment has been suspended because she has developed high grade pressure sores and the treatment for this takes priority over the chemotherapy, the doctor has recently advised us that her pp has reduced from 15 at the outset to 3. This is encouraging, and she is not…[Read more]
ron replied to the topic Dexatude in the forum Side-effects 13 years, 3 months ago
Sorry to go off at a bit of a tangent but I am fairly new to the site and will be probably be asking some pretty naiive questions over the coming weeks.
Can someone tell me what Dexatude is? I have searched this site and googled it but can find nothing. Christine is on Dexamethasone – is this the same thing? She suffers from anxiety, shaking…[Read more]
ron replied to the topic Anaemia and Blood Transfusion in the forum Treatment 13 years, 3 months ago
Many thanks for your helpful responses. As you say, Ron, it is worrying if you give in to the temptation to trawl the net, and that was precisely what I had been doing before I discovered this site! Physically, Christine is standing up to the CDT treatment without too many bad side-effects, the main problems being constipation, extreme anxiety…[Read more]
ron replied to the topic Infusion for strengthening bones! in the forum General 13 years, 3 months ago
Hi Michelle
My wife was diagnosed with mm only a month ago. At first it was thought that the pain in her back and sides was due to crushed vertebrae and cracked ribs (that is what the X-ray showed) and it was only after having a CT scan and blood test that the mm showed up. She had a pamidronate drip to strengthen her bones even before the mm…[Read more]
ron started the topic Anaemia and Blood Transfusion. in the forum Treatment 13 years, 4 months ago
Hi everyone
I introduced myself on the "Newcomers" page the other day. My wife Christine is aged 69 (one month away from 70)and has only been under treatment for myeloma for 2 weeks – hence I am very green on the whole issue. After 2 weeks on cyclophosphomide, dexamethasone and thalidomide, we had our first check-up with the haematologist…[Read more]
ron started the topic Breathlessness. in the forum Newcomers 13 years, 4 months ago
My wife Christine has been newly diagnosed with myeloma and as yet we are uncertain of what symptoms are relevant and how urgent they are. Apart from nausea and anxiety, which I mentioned in my previous post, she suffers from breathlessness following the slightest exertion. We are to see the haematologist on Tuesday (4th) so we will discuss it…[Read more]
ron started the topic New member. in the forum Newcomers 13 years, 4 months ago
Hi everyone
My wife Christine was diagnosed with myeloma on 9th December and she has been on a course of chemo for 11 days. She is suffering from nausea almost constantly but the symptom that is most worrying me is her constant depressive state and extreme anxiety. This is of course understandable and the haematologist is referring her for…[Read more]
