Osteosclerotic myeloma

This topic contains 3 replies, has 3 voices, and was last updated by  bugsby 10 months, 3 weeks ago.

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  • #147989

    bugsby
    Participant

    Recently diagnosed with osteosclerotic myeloma and had first treatment today, was wondering if anyone else is being or has been treated for same.

    #147990

    kh0305
    Moderator

    Hi Bugsby
    Sorry to read about your recent diagnosis. I hope the treatment goes well for you. I’m afraid I don’t have any experience of osteosclerotic myeloma but just wanted to mention that you can always contact the info line on 0800 9803332 for more support or use the ask the nurse function if you are unable to find any others with it as it is a more rare form of MM. Wishing you all the best x

    #147991

    mulberry
    Participant

    Hi Busby
    Welcome to the forum, and to the unwelcome but friendly world of myeloma.
    I’m sorry that I too have no direct knowledge of osteosclerotic myeloma.
    However there are at least 70 different genetic abberations known to be associated with myeloma, all of which can co-exist with others. This means in effect that we all have unique experiences of myeloma, so please do not feel alone!
    Best wishes
    Jane

    #147993

    bugsby
    Participant

    Hello,
    Thanks for your reply, I will follow-up on your suggestion

    Thankyou

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