[hendaz68Participant]

Hi Lili

Hope that was ok to say that I was so looking forward to Thursday to have my stem cells back & to be reborn as I think the phrase I’ve seen here before.

Onwards and Upwards to everyone.

Peter

Xxxx

[kh0305Moderator]

Hi Peter,
Sorry to hear of the set back but I’m so pleased to see you are maintaining your positivity and keeping fit and well otherwise 🙂 I’m sure it won’t be long until you kick it into touch again and get your stem cells back in a much better state!

Lilib- Sorry to hear that covid has thrown a spanner in the works for your husband. So frustrating when as you say, you’ve been so careful. I hope a new slot is sorted for you much faster than the airlines sort out their flights!

Good luck to you both and keep us posted xx

[hendaz68Participant]

Hiya All.

Hopefully find out today if I start my new treatment on Monday. My consultant is going to try me on Darzalex, Dexamethasone & Velcade treatment hopefully it won’t be a long process then as soon as I have the all clear get my stem cell transplant sorted 🤜❤️🤛.

Take care everyone have a great weekend.

Peter

Xxxx

[lilibParticipant]

That sounds like good news, Peter. I hope that you can achieve the right conditions for transplant in a very short time.

In other news, my husband has been transferred to another hospital for his SCT (his choice), and we are going on a visit on Monday, with a planned admission date of 15th August. I think I will barricade the front door from 5th August onwards – we don’t want any more sneaky viruses creeping in.

[hendaz68Participant]

Hiya Lilib

Thank you, yeah I’m sure the treatment is 3 times a week for 3 weeks per cycle? Tbc today hopefully 🙏 then take it from there let the medication does it’s job.

Thanks for the update on your hubby I hope everything works out for you both. Hope the new hospital visit goes well, I too still have doubts regarding my outpatient treatment as well but will wait until I finish the next treatment.

Keep those doors & windows locked & don’t let anyone in your house please keep those germs away from your hubby 🙏

Peter

Xxxx

[tony642Moderator]

Hi there,

I am one of the forum volunteers and have only just seen your post. Am I correct in saying you are going for SCT on monday? If so, I have had the same treatment, so if you want any information from someone who has experienced going through it, do not hesitate to ask.

Regards, Tony

[hendaz68Participant]

Hiya Tony

Thanks for the support much appreciated. My SCT was cancelled a couple of weeks ago due to Myeloma coming back so quick after my final treatment so hoping to start new treatment on Monday coming.

I will be back in contact though 👍

Many thanks
Peter

[lilibParticipant]

Hi Peter,

Just wondering how treatment is going for you now?

My husband was admitted for his SCT yesterday. It’s a hospital that is an hour’s drive away, and visiting is not allowed, but we are keeping in touch thanks to WhatsApp. He was relieved that this hospital does not suggest a nasal-gastric tube, and he has a PICC line instead. He was quite anxious about having a tube up his nose, so that’s very good news.

Personally, I am so glad that we weren’t persuaded to have the treatment as an outpatient. The responsibilty would have weighed heavily on me.

LiliB

[Author]

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