[PerkymiteParticipant]

My appointment is still another month away, 22 Feb, but I thought I would start some research on what I might be looking at for the next phase of treatment.

Story so far; CDT then SCT (Nov 2010). I am just starting to relapse from my SCT; pps up, not dramatically but steadily climbing from 2.3 (at end of SCT – never got full remission) now 6.7 and on 22 Feb ??.

I am too old for a second SCT cut off is 70 in the NHS. So I wondered what might be the next round of treatment/s?

Anybody get a new crystal ball for Christmas and could do the Mystic Meg bit for me:-D . Forewarned is forearmed as they say.

Kindest regards ? Vasbyte

David

[jmsmythParticipant]

Hi David

Sorry that you may be relapsing and I can't give any adviceoin other treatments. Frank is 70 in Aptil and waiting for date for SCT. Consultant told hm that they would not give him another because of his age. The harvested 7,6 million cells.
On news few weeks at Macmillan were confronting the government saying they were denying elderly cancer patients treatment because of their age and that this was illegal as it was discrimination. It should be on their fitness and general health. On the next hospital visit we saw a registrar and Frank relayed this to him and told him that if he relapsed soon after the SCT he would fight them. The registrar said it was his prerogative but he did indicate that he would do the same.

I do hope David that they get a treatment that gives you a long remission

Love and best wishes
Jean xx

[VickiParticipant]

Hi David,
Sorry to hear you are relapsing, could it be a blip? I hear this velcade injection can do wonders. Someone my mum knows got a 10 year remission from sct then velcade whacked it into touch again after two injections…..maybe the velcade in ejection is just the job.

Keep warm and well….snowed in here in the Forest of Dean 🙂

Vicki and Colin x

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