[rach1975Participant]

I have just been diagnosed on 31st July at the age of 51 with multiple myeloma.

Has anyone got any advice on how to deal with lower back vertebrae fractures ? For example back brace or back support.

Any advice would be appreciated.

Many thanks

Rachel

[shaun3Participant]

Hi Rachel, I’m sorry to hear that, Im about 8 ½ years ahead if you having been diagnosed age 53 in 2015. I had a bad back and its turns out I had two crumbling vertebrae. My back is fine now and I’m MRD negative too. After lots of scans i was referred to the royal national orthopaedic hospital at Stanmore. At one point they suggested a brace but thankfully they decided to leave it and actually once the MM was under control the vertebrae grew back, amazing really. I had Zometa and also Adcal for 8 years. Wishing you all the very best on your journey. There is a lot to be optimistic about. Shaun

[rach1975Participant]

Hi Shaun

Thanks for your reply.

This all very new to me.

I finished my first dose of dexamethasone last week and am now waiting further treatment but have been given liquid 5ml morphine and slow release morphine tablets. Were you given either of these and if so, how did you get on?

Thanks

Rachel

[shaun3Participant]

Hi Rachel, how did you find the Dexamethasone? I must admit I never enjoy it but it does work. I’ve not had morphine for back pain but I hope it worked? I’m sure your consultant will be recommending other treatment with the dex, there are some standard treatments but they often depend upon the level of your lightchains and paraproteins etc. Are you seeing a myeloma specialist, I found that helped. Wishing you all the best, Shaun

[rach1975Participant]

Hi Shaun

Got on quite well with it.

The only thing I noticed was that I was still awake at midnight when usually I’d be half a sleep by 10pm.

How long was it after the first 4 days of dexamethasone did you start your treatment?

I’ve been told that I need to have a dental check before I can start chemo. Did you have to do the same?

I tried 2.5ml of liquid morphine at about 2pm but will be trying 5ml before bed.

Thanks

Rachel

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