[StanstanParticipant]

Hi Tom
How is it going? haven’t been on line for months so have missed so much. Glad to be back.
How is everything now Tom?
Upwards and Onwards
Charlie

[tomParticipant]

Hi Charlie
Doing great thanks, I am now on (today) my third cycle of the Velcade and the dex and to be fair it has been a bit strange to me ?? .

The first few weeks after taking my Dex (take that every Monday ) I lost my sleep pattern for four days then Friday hit the preverbal brick wall then normal for the week end to start all over again Monday But the last three weeks I slept like a log no lose of sleep at all but too much sleep I was having to have ?? .
But bloods all moving in the right direction so am happy, still getting up to go to work and getting out and about for a few pints.

How’s you doing these days Charlie ? Hope it’s all onwards and upwards

Tom as always onwards and upwards x

[blessthischickParticipant]

Just wanted to add my best wishes to you Tom. You r a real trooper. Lots of love and best wishes 🙂 x

 

[DizzylizParticipant]

hi tom,

glad to see your still doing ok on the new treatment, thought id look in and catch up on everyone, can’t believe the clocks are going forward this coming weekend, makes for feeling upbeat and looking forward to the months ahead, keep well tom & elaine.

love liz & kev xx

[StanstanParticipant]

Hi Tom
How are you, just got on the site on iPad. Let us know.
Love Charlie and Mary x x

[tomParticipant]

Hi you all

Don’t know where the time has gone ?? Moved home in December (13th) and it’s been all go one way or another.

Anyway my treatment”…… On my third week of my third cycle and all doing well, just feel tired more than I used to but still manage to clock on at work and go out for a pint or three. Sleep like a log now except on my Dex Mondays ha ha and today is my wide awake nit hehe.

You all take care
Love Tom onwards and upwards xx

[CarolsymonsParticipant]

Well done Tom! You are an inspiration.

Carol

[StanstanParticipant]

So glad you are doing well Tom. That is the power of positive thinking. Do they say when the sct will be?

Thanks for keeping us all Upwards and Onwards.
Love Charlie and Mary

[HelenRParticipant]

Hi Tom,

Nice to see you’re keeping in those good spirits. I’m on week 1 of cycle 2 so in following along behind you… Also velcade and (lots of) Dex but with added thalidomide, VTD. You’d have been told not to drink on that though, so it’s a good thing you can still drink your pints (and vodka??) Though I did check and it’s not like if you have the odd drink you instantly throw up or your liver explodes or anything… Just they say thalidomide can make you drowsy and alcohol can make you drowsy… I’ve not been feeling like drinking much to be honest but I do have the odd drink if out socially and it’s fine. I was out on Saturday night with friends who were drinking cocktails so I decided the best choice was an espresso Martini 🙂 no way if be drowsy on that.

Of course then with the Dex and espresso I was wide awake at 3am cleaning my kitchen 🙂

Onwards and upwards!

Helen

[tomParticipant]

Your all more than welcome and you all are my inspiration, it’s not easy comming onto a site like this Mm am sure but for me it helps reading your good posts and we have many on here that are Onwards and upwards who also Vabyte and do whatever it takes and also know that every day is a gift.

So you all keep me going also

[tomParticipant]

Bloomin half post again but am sure you all get my drift lol xxxx

[DizzylizParticipant]

Hi Tom,

Good to hear you are doing well and still manage to clock on, keep up with that positive attitude you are deffinetly an inspiration to us all.

Keep well love liz & kev xx

[DizzylizParticipant]

Tom, just noticed the time of your last post!! X

[VickiParticipant]

Hey Tom,

Just picked up on the thread, glad you are doing well and feeling ok, there is no doubt about it, you are an inspiration. I will never forget the support that you gave Colin and I when we joined the site and continue to do, for us and all of the fellow cyber friends. Any idea when the next sct is? I might have missed it because I still can’t get the hang of this,forum !

Vicki and colin xxx

[tomParticipant]

Hi Vicky and Colin

Your wayy too kind I just do what I feel is best, not just for me and mine but all of us Mm folks, as I have to admire to being a iccle bit selfish

[Author]

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