Syngeneic SCT

This topic contains 4 replies, has 5 voices, and was last updated by  tom 13 years, 6 months ago.

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  • 25th June 2011 at 2:30 pm #84560

    Belles
    Participant

    Hi Everyone

    My Mum was diagnosed 5 years ago with MM, she had a course of chemo followed by a successful SCT. But, sadly she has relapsed earlier this year and treatment started again. She is now on stage 4/6 of Velcade in readiness for another SCT.

    As she is a twin they are offering her a syngeneic SCT this time, has anyone had one of these?

    Many thanks

    30th June 2011 at 3:14 pm #84561

    ellen
    Moderator

    Hello.. I am sorry that you haven't had any responses to your question. A syngeneic transplant is very rare in myeloma so it's likely that forum users don't have any experience of it.

    This reply will bump your post back up though so hopefully it will be seen by someone who can answer your question.

    Kind regards

    Ellen

    30th June 2011 at 4:25 pm #84562

    eve
    Participant

    Hi Bellis
    Just thought I would pop in and say hello,and offer you a welcome

    I cannot help you with your posting,
    I am assuming your mums twin will donate stem cells!!!!!.
    If it is ,it sounds wonderful to me,I hope it works out for your mum,and someone is able to give you some help,Any advancement on treatment,is something we all like to know about, keep in touch and let us know,what happens.
    best wishers Eve

    30th June 2011 at 8:59 pm #84563

    Min
    Participant

    Hi Belles,
    I have read of one person who had this but I think it was in the USA, whoever it was and Im sorry I cant remember I do recall they were very high profile within the usa, maybe they were something to do with the International myeloma foundation, I feel they may have spoken in the house of representatives about it. Sorry ant remember more but Im sure you can surf more for it. Meanwhile welcome, is your mum an identical twin? You cant get a better match if she is as the DNA is exactly the same.
    Sorry you cant find out more but a transplant from a twin has to be the very best option you can get for an SCT.. Good luck to your mum when it happens.
    Min

    2nd July 2011 at 10:17 am #84564

    tom
    Participant

    Hi claire

    Sorry I cant add to your post cept to say

    Good Luck to your Mum in her treatment regime, and am sure some one will know a bit mmore about it.

    Godd Luck

    Tom "Onwards and Upwards" xx

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