The myeloma RUDY study

This topic contains 2 replies, has 3 voices, and was last updated by  mulberry 5 years, 5 months ago.

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  • 20th September 2018 at 12:14 pm #138286

    docmike
    Participant

    This study may have been mentioned before by myeloma uk as they are supporting it but if you ve not seen mention of it before then go to rudystudy.org and explore .They are wanting to recruit lots of patients with myeloma and this will provide a database (?first in uk for myeloma). It takes a couple of online sessions to register as there are lots of questions to assess your myeloma and its effect on you as well as the clinical story but thats a requisite of an useful database .It will provide benefits in the future and is especially looking at bone disease .
    Michael

    19th November 2018 at 5:59 pm #139384

    ale2104p
    Participant

    I signed up over the weekend and would like to encourage others to do the same. A very worthy resource

    27th November 2018 at 5:42 pm #139405

    mulberry
    Participant

    So far there are only 100 myeloma patients signed up, the more there are the better informed decision makers will be. The questionnaire is not difficult or time consuming to complete.

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