[sallyParticipant]

Hello dear people

My husband Guy has just been diagnosed with myeloma and has now been in hospital for ten days. I found the forum very easily but got scared to read posts and have been squinting around the corners ever since.

However, just dipping a toe in has helped me to realise that you are all there for each other and that, once we get used to the fact that this is where we are, you are a mine of helpful information and emotional support.

It's early days for us and we are absolutely determined to be positive. All my (and Guy's) best efforts occasionally crumple though (mostly in the early morning) so please expect me to sometimes be a pain.

I would like, given time, to become a useful, informative and caring member of this forum and sincerely hope that Guy will be well enough to join me here with you in the future.

Ali

[jmsmythParticipant]

Dear Ali

I am sorry to have to be one of the first to welcome you and Guy to the forum. Getting the diagnoses is as you say a terrible shock but you have come to the right place. My husband has SMM and the people on this site are terrific. They have a wealth of knowledge and they will be there for you when you need them with information, comfort and support. I hope it is not long before Guy is home with you.

Best Wishes to you both and keep positive
Love Jean xx

[MinParticipant]

A very warm welcome to you Sally and of course Guy. Please feel comfortable in our unique little 'club'
Its very comforting to chat -even if it is on line to someone who understands how you feel.
Especial in the small hours, but mornings make things look soooo much better.
I hope Guy does not have to spend too long in hospital, and when he gets home he gets to grips with whatever treatment option he is on. It is all very confusing to start with…….so many tablets to take at different times. But rest assured there will be someone on here who is on the same regime, and has the same side effects and down days. In case no one has warned you. Be prepared for the days with 'DEX' when you husband will change character without warning and eat you out of house and home and surf the net because he cant sleep. (Why cant they do the ironing?) LOL
Min

[DaiCroParticipant]

Hi Ali,

Welcome, I am glad that you have found us. This is a wonderful site and we sit in our corner of it and try to support, succour, inform, befriend and.. well, just be for the most part.

You will find a great mix of people on/in different stages of the Myeloma 'journey', a good number are carer's like yourself, willing to share experiences of and with the disease as well as the effects on domestic and relationship life… its all here and we try our best.

I wish you and Guy well as you adjust to this new way of life… stay positive is my advice… banish negativity in all its forms and whoever brings it to your door. Delve into the sections – carer's Under 50's etc (even I peek in there for a quiet look/listen when no one's about and I'm… 57 – I had to check there:-D ).

Some weaken with the morning's reality, some with the evening's lull, some as the ********** dex keeps them w i d e a w a k e, ************** dex. Ahem, as we were. 🙂

Although it may seem that your world has stopped revolving, or that you walk upon it in a strange kilter, it won't be long before you start finding answers, questions, resolutions, more questions, better answers and then a way forward that will seem abnormally normal.

And we will walk with you.

Dai.

[GillParticipant]

Hi Sally

Welcome to the site. I am sure that you will get a great deal of information and support from everybody on here. It is my husband who is the mm person, and I have found a great deal of support and information on here. Good luck

Gill

[jmsmythParticipant]

Sorry Ali after reading my post it did not sound right. I meant to say that sorry that you find yourself in the position of joining us.

Jean xx

[sallyParticipant]

How lovely Jean and Min to receive replies so instantly. Thank you. It's wonderful to know that you are there in the wee smalls! Yes Min I think I understand about the "DEX". (The steroids? is that right?) As you both say, it's all very confusing – I looked at some other first posts and understood not a word.

Well, it's time for bed – hmm… Guy and the ironing??? I might dream about this. Help. Much love and many thanks – Ali

[sallyParticipant]

Jean – I knew exactly what you meant – I almost said it myself!

Dai – Thank you. I am only just beginning to understand the Dex jokes! We have some already but I'll ask Guy if it's ok to tell them. Fantastic to know that there are others stepping by our side.

Gill – thank you too for your very kind words. You could be so helpful to me as I'm already finding the caring difficult even in hospital.

Ali

[DaiCroParticipant]

Don't listen to that guff from Gill Sally – she is a rock… immovable, enduring and wonderful. Gill and others on this board have maintained and sustained me from a distance more than they will ever know.

Dai.

[brochoParticipant]

Hi Ali welcome to you and Guy as others have said we are all here for each other so if you need answers ask and if you just need to offload when things get too much this is the place to do it! It really will get easier as Guys treatment gets underway and you will get some normality back in your life before too long .I hope Guy gets home soon love Bridget x

[tomParticipant]

Hi Ali

A warm welcome to this great site, Am sure with time you get used to all the tech stuff? (well i hope so then you can help me he he)

We have some great folk on here that have been a great help to me over the last year and a bit(ish)

Tom "Onwards and Upwards" xx

[michelleakitt29Participant]

Hello Ali

just wanted to say hello and welcome you to the site……as i say to all the new comers you are not alone, and we all try and do our bit to help.

with much love michelle x x x

[AMcGuireParticipant]

Just want to say hi Ali.

As everyone has said before me – this site is absolutely tremendous! You'll get more help, advice, support and answers here than some consultants can provide. I have recently returned after a 3 year break. We're all more or less in the same boat so lean on each other in times of need.

I care for my husband John, diagnosed December 2006. I remember vividly when he returned home from his first consult him telling me that he'd met a lady in the waiting room who had been in remission from MM for 19 years – wow, this gave us both great hope and we've clung onto that hope since then.

I do hope Guy will soon be well again so you can have him home with you.

With love
Angelina xx

[eveParticipant]

dear Ali
Sorry you have had to start this journey,As time goes by the medical side gets easier to understand,and you will find this site helps with a lot of the general stuff that comes up with mm.,there will be someone ahead of you in this journey,who knows what you are going through,and no matter how good family and friends are,its the person in front of you on this journey,who can give you an answer and also support plus a lot of hope.
Welcome to the club.

My husband Slim.has mm.On myeloma M1 trials,had 3 cycles of chemo,hospitalised with septic pneumonia,plus complications.22 days in hospital but out now.A setback that knocked us backward,but without the help of people on this sight I do not think I could have stayed so strong.

Wishing you well.eve

[BADGERParticipant]

Welcome Ali and Guy

SO sorry you had to join this club it has been a great comfort to me as I am sure it will be to you when you are in the darkest places there is always someone with advise and comforting words I now its hared to find anyone in the big wide world that has heard of Myeloma that is why this site is so important

Be strong love jO 🙂

[Author]

Posts